National Institutes of Health (NIH) letter accepting RPASF’s gift of $20,000

RP BOD

The Relapsing Polychondritis Awareness and Support Foundation, Inc. (RPASF) is pleased that the NIH has accepted its gift of $20,000, which will be used to support research on relapsing polychondritis (RP). The gift was made possible by a partial research grant from the American Autoimmune Related Diseases Association, Inc. (AARDA), which was matched by RPASF. […]

Aseptic Meningitis in Relapsing Polychondritis: A Case Report & Literature Review

RP BOD

Aseptic meningitis is an extremely rare neurologic complication of relapsing polychondritis (RP). We reported a case of a 58-year-old Chinese female with intractable headache, puffy ears, pleocytosis, and cranial magnetic resonance imaging (MRI) showing thickened and enhanced meninges. She was finally diagnosed of aseptic meningitis due to RP after full exclusion of infectious causes. She […]

Relapsing Polychondritis: A Chameleon Among Orphan Diseases

Chameleon

Relapsing polychondritis (RPC) is a rare disease with recurrent episodes of inflammation of cartilage tissue leading to fibrosis and organ damage. Despite unknown etiology, there is some evidence of a genetic predisposition. The clinical presentation is heterogeneous and an association with other autoimmune disorders such as rheumatoid arthritis or different forms of vasculitis has been […]

13 Doctors from 5 Countries Met in Washington, D.C. to Discuss Relapsing Polychondritis!

Hands in Center

Washington, D.C. November 14, 2016 – The Relapsing Polychondritis Awareness and Support Foundation (“RPASF” or the “Foundation”) was thrilled to help host 13 Doctors from 5 Countries at the Henley Park Hotel in Washington, D.C. to discuss relapsing polychondritis (“RP”)! The Foundation is extremely grateful for this highly skilled group’s dedication to patient care and […]

Relapsing Polychondritis Awareness and Support Foundation Releases “RP The Ride of My Life”

RP Ride Of My Life

The Relapsing Polychondritis Awareness and Support Foundation is proud to release its first documentary, “RP The Ride of My Life,” chronicling one woman’s journey to live life with purpose while suffering from Relapsing Polychondritis (RP), a rare autoimmune disease. [imic_button colour=”btn-default” type=”enabled” link=”https://globalgenes.org/raredaily/relapsing-polychondritis-awareness-and-support-foundation-releases-rp-the-ride-of-my-life/” target=”_blank” extraclass=”” size=”btn-lg”]Learn More[/imic_button] [imic_button colour=”btn-default” type=”enabled” link=”https://polychondritis.org/the-ride-of-my-life/” target=”_blank” extraclass=”” size=”btn-lg”]Watch Video[/imic_button]

$20,000.00 Matching Research Grant Awarded

RP BOD

The Relapsing Polychondritis Awareness and Support Foundation, Inc. (RPASF) is pleased to announce that we are the recipient of a partial research grant from the American Autoimmune Related Diseases Association, Inc. (AARDA), which will be matched by RPASF. As a result, RPASF and AARDA will be funding Dr. Marcella Ferrada’s relapsing polychondritis (RP) research at […]

Dr. Ferrada’s Abstract ‘Clinical Presentations of Relapsing Polychondritis: More Than a Swollen Ear’

ACR

Read Dr. Ferrada’s Abstract ‘Clinical Presentations of Relapsing Polychondritis: More Than a Swollen Ear’ which will be presented at the 2016 meeting of the ACR. [imic_button colour=”btn-default” type=”enabled” link=”https://polychondritis.org/wp-content/uploads/2016/10/Abstract-Number-1330.pdf” target=”_blank” extraclass=”” size=”btn-lg”]Download the Abstract[/imic_button]

Abstract Announcement

ACR

Friday, September 2, 2016, Washington, DC. RPASF, Inc. is proud to announce the following for each of the patients who helped and participated in our survey “Relapsing Polychondritis Epidemiology” : Dear Marcela Ferrada,