New York, NY July 23, 2018 – The Relapsing Polychondritis Awareness and Support Foundation Inc. (“RPASF” or the “Foundation”) is pleased to announce new leadership. Earlier this month, RPASF appointed four additional members to its board of directors: Nancy Linn, David Bammert, David DeRosa, and Michael Linn. Carol Giordano, founder…...
NY Autoimmune Walk & Public Forum
NY Autoimmune Walk & Public Forum Sunday, September 16th 1-5pm Hudson River Park, Pier 45, Greenwich Village NY The New York Autoimmune Walk, hosted by AARDA, brings autoimmune patients, family members, and friends together for a walk around Hudson River Park. There will be live music, a Nespresso station, an…...
5th Year Anniversary T-Shirt Fundraiser – Has ended! Thank you!
The Relapsing Polychondritis Awareness and Support Foundation is celebrating its 5th year anniversary! It has been an honor to continue raising awareness and it is working! More people, including children, are getting diagnosed earlier than ever before! In celebration, we have come out with a 5th year anniversary, limited edition…...
National Institutes of Health (NIH) letter accepting RPASF’s gift of $20,000
The Relapsing Polychondritis Awareness and Support Foundation, Inc. (RPASF) is pleased that the NIH has accepted its gift of $20,000, which will be used to support research on relapsing polychondritis (RP). The gift was made possible by a partial research grant from the American Autoimmune Related Diseases Association, Inc. (AARDA),…...
Aseptic Meningitis in Relapsing Polychondritis: A Case Report & Literature Review
Aseptic meningitis is an extremely rare neurologic complication of relapsing polychondritis (RP). We reported a case of a 58-year-old Chinese female with intractable headache, puffy ears, pleocytosis, and cranial magnetic resonance imaging (MRI) showing thickened and enhanced meninges. She was finally diagnosed of aseptic meningitis due to RP after full…...
Relapsing Polychondritis: A Chameleon Among Orphan Diseases
Relapsing polychondritis (RPC) is a rare disease with recurrent episodes of inflammation of cartilage tissue leading to fibrosis and organ damage. Despite unknown etiology, there is some evidence of a genetic predisposition. The clinical presentation is heterogeneous and an association with other autoimmune disorders such as rheumatoid arthritis or different…...
13 Doctors from 5 Countries Met in Washington, D.C. to Discuss Relapsing Polychondritis!
Washington, D.C. November 14, 2016 – The Relapsing Polychondritis Awareness and Support Foundation (“RPASF” or the “Foundation”) was thrilled to help host 13 Doctors from 5 Countries at the Henley Park Hotel in Washington, D.C. to discuss relapsing polychondritis (“RP”)! The Foundation is extremely grateful for this highly skilled group’s…...