News

Over the last few months, the Foundation has been busy evaluating the current Board for skills, abilities and tenure. Carol Giordano has been elected CEO. We wouldn’t be here without her! As you know, she has been battling RP for a very long time. She’s willing and able to battle…...

That’s right, it’s that time of year again, only this year it’s bigger and better than ever before! There will be three bands, food provided by Chef Mike from last year, who will be treating everyone this with his amazing culinary delights. There will be raffles, giveaways, along with fun…...

Ephram White Park Bowling Green, Kentucky Date: July 8, 2017 Time: 8:00 AM to 1:00 PM Hi Everyone, Do you know that when you sponsor a walker on our team, RPASF receives a share of that contribution? Also, when someone you know becomes a sponsor of the walk, our share…...

The Relapsing Polychondritis Awareness and Support Foundation, Inc. (RPASF) is pleased that the NIH has accepted its gift of $20,000, which will be used to support research on relapsing polychondritis (RP). The gift was made possible by a partial research grant from the American Autoimmune Related Diseases Association, Inc. (AARDA),…...

Aseptic meningitis is an extremely rare neurologic complication of relapsing polychondritis (RP). We reported a case of a 58-year-old Chinese female with intractable headache, puffy ears, pleocytosis, and cranial magnetic resonance imaging (MRI) showing thickened and enhanced meninges. She was finally diagnosed of aseptic meningitis due to RP after full…...

Relapsing polychondritis (RPC) is a rare disease with recurrent episodes of inflammation of cartilage tissue leading to fibrosis and organ damage. Despite unknown etiology, there is some evidence of a genetic predisposition. The clinical presentation is heterogeneous and an association with other autoimmune disorders such as rheumatoid arthritis or different…...

Washington, D.C. November 14, 2016 – The Relapsing Polychondritis Awareness and Support Foundation (“RPASF” or the “Foundation”) was thrilled to help host 13 Doctors from 5 Countries at the Henley Park Hotel in Washington, D.C. to discuss relapsing polychondritis (“RP”)! The Foundation is extremely grateful for this highly skilled group’s…...

Adult and pediatric patients are invited to come to the NIH in Bethesda, MD to participate in a research study.  The purpose of the study is to observe how RP affects you and to collect blood samples for research.  All patients will receive comprehensive clinical evaluation by physicians with experience…...

The Relapsing Polychondritis Awareness and Support Foundation is proud to release its first documentary, “RP The Ride of My Life,” chronicling one woman’s journey to live life with purpose while suffering from Relapsing Polychondritis (RP), a rare autoimmune disease....

The Relapsing Polychondritis Awareness and Support Foundation, Inc. (RPASF) is pleased to announce that we are the recipient of a partial research grant from the American Autoimmune Related Diseases Association, Inc. (AARDA), which will be matched by RPASF. As a result, RPASF and AARDA will be funding Dr. Marcella Ferrada’s…...