Welcome to your new Board of Directors for the Relapsing Polychondritis Awareness and Support Foundation!
Over the last few months, the Foundation has been busy evaluating the current Board for skills, abilities and tenure. Carol Giordano has been elected CEO. We wouldn’t be here without her! As you know, she has been battling RP for a very long time. She’s willing and able to battle for awareness at the same […]
The 3rd Annual Los Angeles Autoimmune Walk, Saturday, November 11th 1:00 – 5:00pm
That’s right, it’s that time of year again, only this year it’s bigger and better than ever before! There will be three bands, food provided by Chef Mike from last year, who will be treating everyone this with his amazing culinary delights. There will be raffles, giveaways, along with fun and games for all! This […]
The Relapsing Polychondritis Awareness Support Foundation (RPASF) and the American Autoimmune Related Disease Association (AARDA) Walk & Fun Run
Ephram White Park Bowling Green, Kentucky Date: July 8, 2017 Time: 8:00 AM to 1:00 PM Hi Everyone, Do you know that when you sponsor a walker on our team, RPASF receives a share of that contribution? Also, when someone you know becomes a sponsor of the walk, our share is even larger. That’s right! […]
National Institutes of Health (NIH) letter accepting RPASF’s gift of $20,000
The Relapsing Polychondritis Awareness and Support Foundation, Inc. (RPASF) is pleased that the NIH has accepted its gift of $20,000, which will be used to support research on relapsing polychondritis (RP). The gift was made possible by a partial research grant from the American Autoimmune Related Diseases Association, Inc. (AARDA), which was matched by RPASF. […]
Aseptic Meningitis in Relapsing Polychondritis: A Case Report & Literature Review
Aseptic meningitis is an extremely rare neurologic complication of relapsing polychondritis (RP). We reported a case of a 58-year-old Chinese female with intractable headache, puffy ears, pleocytosis, and cranial magnetic resonance imaging (MRI) showing thickened and enhanced meninges. She was finally diagnosed of aseptic meningitis due to RP after full exclusion of infectious causes. She […]
Relapsing Polychondritis: A Chameleon Among Orphan Diseases
Relapsing polychondritis (RPC) is a rare disease with recurrent episodes of inflammation of cartilage tissue leading to fibrosis and organ damage. Despite unknown etiology, there is some evidence of a genetic predisposition. The clinical presentation is heterogeneous and an association with other autoimmune disorders such as rheumatoid arthritis or different forms of vasculitis has been […]
13 Doctors from 5 Countries Met in Washington, D.C. to Discuss Relapsing Polychondritis!
Washington, D.C. November 14, 2016 – The Relapsing Polychondritis Awareness and Support Foundation (“RPASF” or the “Foundation”) was thrilled to help host 13 Doctors from 5 Countries at the Henley Park Hotel in Washington, D.C. to discuss relapsing polychondritis (“RP”)! The Foundation is extremely grateful for this highly skilled group’s dedication to patient care and […]
The National Institutes of Health (NIH) is interested in studying patients with Relapsing Polychondritis (RP)
Adult and pediatric patients are invited to come to the NIH in Bethesda, MD to participate in a research study. The purpose of the study is to observe how RP affects you and to collect blood samples for research. All patients will receive comprehensive clinical evaluation by physicians with experience caring for patients with RP. […]
Relapsing Polychondritis Awareness and Support Foundation Releases “RP The Ride of My Life”
The Relapsing Polychondritis Awareness and Support Foundation is proud to release its first documentary, “RP The Ride of My Life,” chronicling one woman’s journey to live life with purpose while suffering from Relapsing Polychondritis (RP), a rare autoimmune disease. [imic_button colour=”btn-default” type=”enabled” link=”https://globalgenes.org/raredaily/relapsing-polychondritis-awareness-and-support-foundation-releases-rp-the-ride-of-my-life/” target=”_blank” extraclass=”” size=”btn-lg”]Learn More[/imic_button] [imic_button colour=”btn-default” type=”enabled” link=”https://polychondritis.org/the-ride-of-my-life/” target=”_blank” extraclass=”” size=”btn-lg”]Watch Video[/imic_button]
$20,000.00 Matching Research Grant Awarded
The Relapsing Polychondritis Awareness and Support Foundation, Inc. (RPASF) is pleased to announce that we are the recipient of a partial research grant from the American Autoimmune Related Diseases Association, Inc. (AARDA), which will be matched by RPASF. As a result, RPASF and AARDA will be funding Dr. Marcella Ferrada’s relapsing polychondritis (RP) research at […]
Dr. Ferrada’s Abstract ‘Clinical Presentations of Relapsing Polychondritis: More Than a Swollen Ear’
Read Dr. Ferrada’s Abstract ‘Clinical Presentations of Relapsing Polychondritis: More Than a Swollen Ear’ which will be presented at the 2016 meeting of the ACR. [imic_button colour=”btn-default” type=”enabled” link=”https://polychondritis.org/wp-content/uploads/2016/10/Abstract-Number-1330.pdf” target=”_blank” extraclass=”” size=”btn-lg”]Download the Abstract[/imic_button]
Abstract Announcement
Friday, September 2, 2016, Washington, DC. RPASF, Inc. is proud to announce the following for each of the patients who helped and participated in our survey “Relapsing Polychondritis Epidemiology” : Dear Marcela Ferrada,