Relapsing Polychondritis Foundation Announces a Powerhouse Healthcare Coalition with the University of Pennsylvania and the National Institutes of Health (NIH) sponsored Vasculitis Clinical Research Consortium (VCRC)
![mcl pr web1 scaled 1](https://polychondritis.org/wp-content/uploads/2022/06/mcl-pr-web1-scaled-1-1024x683.jpg)
The Relapsing Polychondritis (RP) Foundation has announced a generous gift to establish the Penn Relapsing Polychondritis Fund, which will support a unique partnership between the University of Pennsylvania RP Program and the National Institutes of Health (NIH) sponsored Vasculitis Clinical Research Consortium (VCRC).
RP Research Scientist Spotlight: Emily Rose, BS
![Emily Rose web2 3x2 scaled 1](https://polychondritis.org/wp-content/uploads/2022/06/Emily-Rose-web2_3x2-scaled-1-1024x682.jpg)
Emily Rose is a medical student who is working tirelessly to research relapsing polychondritis (RP). Her work is helping to categorize RP in a more accurate way. This research draws information from all over the world and will provide the basis for clinical trials.
RP Research Scientist Spotlight: Ömer Karadağ, MD
![Omer web2](https://polychondritis.org/wp-content/uploads/2022/06/Omer-web2-1024x683.png)
As a professor at Hacettepe University, a leading university in Turkey, Dr. Ömer Karadağ is well-versed in relapsing polychondritis (RP) and is a crucial part of our international group of supporters.
RP Research Scientist Spotlight: Ora B. Gewurz-Singer, MD
![ora singer web2](https://polychondritis.org/wp-content/uploads/2022/06/ora-singer-web2-1024x682.png)
Dr. Singer is a physician scientist at the University of Michigan in Ann Arbor. As a rheumatology specialist with a practice that includes RP patients, she is an excellent advocate and we are grateful for her support.
RP Research Scientist Spotlight: Keith A. Sikora, MD
![sikora web2](https://polychondritis.org/wp-content/uploads/2022/06/sikora-web2-1024x683.png)
Working with the National Institutes of Health as a pediatric rheumatologist, Dr. Keith A. Sikora gets to see every pediatric patient with RP who walks through the NIH clinic doors. He’s truly on the front lines when it comes to relapsing polychondritis.
RP Research Scientist Spotlight: Jun Shimizu, MD, PhD
![shimizu web1](https://polychondritis.org/wp-content/uploads/2022/06/shimizu-web1-1024x683.png)
Meet Dr. Jun Shimuzu, MD, PhD, who specializes in internal medicine and immunology at the St. Marianna University School of Medicine. His research focuses on the epidemiology and immunology of RP. In his research, he and his team found that gut microbes are abnormal in patients with RP.
Relapsing Polychondritis Foundation Joins the Vasculitis COVID-19 Patient Project
![RP web COVID 19 survey](https://polychondritis.org/wp-content/uploads/2022/06/RP_web_COVID-19-survey-1024x683.png)
The Relapsing Polychondritis Foundation, the Vasculitis Foundation (VF), and the Vasculitis Patient Powered Research Network (VPPRN) have teamed up with partners in the Autoimmune Research Collaborative (ARC) to launch a new COVID-19 patient study.
Relapsing Polychondritis Foundation and Race for RP Featured in AHN Autoimmunity Institute Annual Report
![DSC 0278 web 1 scaled 1](https://polychondritis.org/wp-content/uploads/2022/06/DSC_0278-web-1-scaled-1-1024x683.jpg)
We are honored to support the important work being done at the AHN Autoimmunity Institute, which is advancing the diagnosis, treatment, prevention and cure of all autoimmune diseases through collaborative multi-specialty care, cutting-edge research, advocacy and education.
Laurent Arnaud, Relapsing Polychondritis: 2020 highlights
![Screen Shot 2020 04 25 at 1.53.21 PM](https://polychondritis.org/wp-content/uploads/2022/06/Screen-Shot-2020-04-25-at-1.53.21-PM-1024x574.png)
Please watch Dr. Arnaud’s excellent presentation on novelties about the diagnosis and therapeutic management of relapsing polychondritis, from the April 23rd 2020 webinar hosted by ERN ReCONNET.
Relapsing Polychondritis Foundation and Race for RP Support Researchers’ Efforts to Develop Classification Patient-Reported Symptoms Survey
![NIH Survey HORIZ 20200316 scaled 1](https://polychondritis.org/wp-content/uploads/2022/06/NIH_Survey_HORIZ_20200316-scaled-1-1024x683.jpg)
Collecting this data will advance the goal of standardizing definitions of RP to create uniform groups of patients with key shared features for clinical research and may also provide context to aid in diagnosis.
Race for RP and the Relapsing Polychondritis Foundation Host International RP Research Network Meeting
![post webcover FI poly scaled 1](https://polychondritis.org/wp-content/uploads/2022/06/post-webcover-FI-poly-scaled-1-1024x683.jpg)
The RP Foundation and Race for RP were most pleased to facilitate the IRPRN meeting and look forward to supporting future collaborative meetings that benefit the RP and autoimmune disease communities.
Relapsing Polychondritis Foundation Joins Race for RP to Sponsor Friends’ Night Out, an Evening Celebrating 35 Years of Hope and Discovery with Friends of Patients at the NIH
![FNIH2019 3](https://polychondritis.org/wp-content/uploads/2022/06/FNIH2019-3-1024x683.jpg)
The RP Foundation and Race for RP were most pleased to facilitate the IRPRN meeting and look forward to supporting future collaborative meetings that benefit the RP and autoimmune disease communities.