On 9 November 2019, members of the International Relapsing Polychondritis Research Network (IRPRN) met at The American Hotel in Atlanta, GA to (1) provide an update on the relapsing polychondritis (RP) classification criteria project, (2) introduce a new project to modify the RP disease activity index, and (3) discuss ongoing and recently completed RP-related projects.
Thank you to the highly skilled, collaborative, global experts — with a broad range of specialties and disciplines — for meeting to advance research to facilitate treatments and a cure for RP.
International Relapsing Polychondritis Research Network Meeting
The RP Foundation and the Race for RP were most pleased to facilitate the IRPRN meeting and look forward to supporting future collaborative meetings that benefit the RP and autoimmune disease communities.
RP is a debilitating autoimmune condition characterized by recurrent inflammation of cartilage and other tissues throughout the body. The disease, which can be fatal, affects multiple organs, particularly cartilaginous structures such as the ears, nose, airways and joints as well as eyes, skin, heart valves and brain. The signs and symptoms vary from person to person depending on which parts of the body are affected.
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Gay Ann Colliton says
December 12, 2019 at 4:45 amThank you so much for your efforts, hard work, blood, sweat and tears put into this disease for all of us with the disease! You are the brightest and best! You give me hope.
Deb VanStraten says
February 11, 2020 at 1:44 pmHello, I was part of the FB RP support group run by Carol. I was dx 13 years ago with RP. A couple year’s ago I questioned Tom’s position in the foundation, where money was going, was he set up correctly in the MN nonprofit arena. Because of my questions I was removed from the FB group. I would like to be able to connect with other RP’ers. I’m so happy the foundation is in professional hands.
larry bowling says
November 27, 2020 at 3:29 ammy dad had rp for 25 years i am 61 year old i am being tread for rp i am losing use of my right hand and arm