Relapsing Polychondritis Awareness and Support Foundation, Inc. – Terms and Conditions

Collection of Personal Information

“Personal Information” is information that directly identifies you or could reasonably be used in combination with other information to identify you and which is submitted to and/or collected by RPASF Inc. web sites and maintained by or for RPASF Inc in an accessible form. Examples of Personal Information that directly identify you can include your name, street address, telephone number, email address and other similar information. Examples of Personal Information that when combined with other information may be able to identify you include race, gender, date of birth, health condition or status,, zip code and other similar information. Both types of information are considered “Personal Information” for the purposes of this policy.

Please do not submit any Personal Information if you do not want it to be collected. You should be aware, however, that without providing requested information, even Personal Information, and you may not be able to participate in particular features or activities that require such information.

We do not collect any Personal Information unless it is provided to us voluntarily through forms or data fields. You can visit many areas of our websites without telling us who you are or giving us Personal Information. Certain areas of our websites allow you to contact us to ask questions or provide comments or other information. Please be aware that when you ask questions or provide comments or other information, you may be disclosing Personal Information.

How Personal Information may be used

If you provide us with Personal Information we may use that information to contact you by e-mail, regular mail, telephone or other means, to provide you with information you requested about specific products or services, provide additional future information about products or services that may be of interest to you, and to learn about and develop products and services concerning a particular disease or condition (e.g. market research). Other or additional information about use of your Personal Information may appear at the point where you are asked to provide Personal Information in a form or data field.

RPASF Inc may combine your Personal Information provided on one RPASF Inc web site with Personal Information provided in other online or offline records held by RPASF Inc and/or with records provided by third parties. We use this consolidated information to help us better design RPASF Inc websites and products, to communicate information to you, to enhance our marketing and research activities, and to facilitate other business functions.

Who Personal Information may be disclosed to

RPASF Inc will not transfer or allow access to your Personal Information to third parties, except (i) to affiliated entities within the SRPASF Inc , whether inside the U.S. or in other countries; (ii) to vendors and service providers who assist us in providing service to you (e.g. a fulfillment company for processing and mailing purposes); (iii) in connection with security related or law enforcement investigations or in the course of cooperating with authorities; (iv) to comply with legal requirements or to establish or exercise our legal rights or defend against legal claims; (v) when we believe it is necessary to share information in order to assist in an investigation regarding, or to prevent, illegal activities, suspected fraud, or situations involving potential threats to the safety of any person; (v) upon a sale, merger, assignment or transfer of the business of the website to which the information relates; and (vi) to third parties with whom RPASF Inc is jointly marketing a product or service or jointly conducting a program or activity. Any affiliated entity, vendor or service provider, or other third party who is permitted access to, or to whom we transfer, Personal Information is required to keep your Personal Information confidential.


RPASF Inc takes reasonable precautions to keep Personal Information secure against unauthorized access and use. However, the confidentiality of personal information transmitted over the Internet cannot be guaranteed. We urge you to exercise caution when transmitting personal information over the Internet, especially Personal Information related to your health. Sanofi US cannot guarantee that unauthorized third parties will not gain access to your Personal Information; therefore, when submitting personal information to RPASF Inc websites, you must weigh both the benefits and the risks.

Collection of Non-Personal Information

Non-Personal Information is information that is not personal, such as questions, comments, ideas and suggestions that you provide, or information that we may collect that is not linked to any Personal Information. Non-Personal Information will be treated as non-confidential, and we may disclose and/or use that information without any obligation whatsoever to you, for any purpose and through any means.

RPASF Inc websites may use a tracking technology called a “cookie.” A “cookie” is a small text file that a website can place on your computer’s hard drive in order, for example, to collect information about your activities on the site, to track your preferences and selections, or to show you advertisements based on your interests, such as banner ads relating to RPASF Inc products and services. Cookies may be placed on your computer by RPASF Inc (a “first party cookie”) or by another company or advertiser that RPASF Inc engages to provide services or advertising on a RPASF Inc website (a “third party cookie”).

Information stored in first party cookies associated with a RPASF Inc web site will be transmitted back to us. Information stored in third party cookies may be transmitted to the party placing the cookie, so that they can deliver you messages and advertisements based on your interests as you browse the Internet. With most Internet browsers, you can erase cookies from your computer’s hard drive, block all cookies, block specific kinds of cookies, or even receive a warning before a cookie is placed on your system. Refer to your browser instructions or Help button to learn more about cookies. You should be aware, however, that cookies might be necessary to provide you with certain features (e.g. customized delivery of information) available on RPASF Inc websites. This information is considered Non- Personal Information.

RPASF Inc websites may also automatically collect and store web log information relating to your computer and your visit, such as the name of the domain and host from which you access the Internet; the Internet address of the website from which you linked to a RPASF Inc website; the date and time you accessed a RPASF Inc website, how long you spent and which pages you visited; your Internet protocol (I.P.) address; and your computer’s operating system and browser software. This information is considered Non-Personal Information.

RPASF Inc websites may also track your usage of the site through the use of pixel tags (also called clear gifs or web beacons). A pixel tag is a tiny graphic on a web page that is used to track pages viewed. Pixel tags tell the web site server information such as the IP address and browser type related to the visitor’s computer. Pixel tags may be placed on online advertisements that bring people to a RPASF Inc website and on different pages of our sites. Web beacons provide us with information on how many times a page is opened and which information is consulted. The information collected through use of pixel tags, clear gifs, and web beacons is considered Non-Personal Information.

How to stop getting communications

If you decide you no longer wish to receive information or communications about particular products and services, or from RPASF Inc (for example, postal mailings, emails and telephone calls), you may opt out of any particular product or service or from all mailings by contacting us at the following number: 612-296-1628.

How may I correct or delete Personal Information?

You may request that we remove your Personal Information from our current customer records or that we amend your Personal Information. Please notify us of your wishes by contacting us at 612-296- 1628. For record keeping purposes, we may retain certain Personal Information you submit in conjunction with commercial transactions.

Updates to this Privacy Policy

Without prejudice to your rights under applicable law, RPASF Inc reserves the right to amend this Privacy Policy without prior notice to reflect technological advancements, legal and regulatory changes and good business practices. If SRPASF Inc changes its privacy practices, an updated version of this Privacy Policy will reflect those changes.

Thank you for your interest in RPASF Inc.