Foundation News​

We are pleased to share that the RP Foundation is bringing RP and related autoimmune diseases to the forefront of ground-breaking scientific discoveries, thanks to the concerted efforts of the talented researchers that we’re investing in. Here’s an update from our partners on what they’ve been working on for the past 6 months.

The Ride of My Life documentary features Nancy Linn’s journey toward being diagnosed with Relapsing Polychondritis and her commitment to turn this potentially dire diagnosis into something positive by “living with purpose.”

Thank you to everyone who attended this one-of-a-kind event that rasied over $26,000 for RP and related autoimmune research.

The Relapsing Polychondritis (RP) Foundation is pleased to announce it will continue and expand its partnership with NYU Grossman School of Medicine to invest in and advance the next phase of collaborative VEXAS research.

We’re excited to share that we represented relapsing polychondritis at the NIH Rare Disease Day. The goal of this event is to raise rare disease awareness, spotlight those impacted by rare diseases, and NIH collaborations that advance research for new treatments.

New York – January 25, 2023 – This information is from the Relapsing Polychondritis Foundation Inc. (RP Foundation) with Race for RP. A new study by investigators from the National Institutes of Health (NIH) and New York University Grossman School of Medicine (NYU Grossman), published online in the Journal of the American Medical Association (JAMA) on January 24, found that the recently discovered inflammatory disease VEXAS syndrome is more common than previously understood.