Foundation News

Relapsing Polychondritis Patients, Advocates, and Researchers Emphasize Awareness, Partnership, and Collaboration with Exhibits on Rare Disease Day 2022 at the National Institutes of Health

This year’s Rare Disease Day exhibits supported by the Relapsing Polychondritis Foundation included presentations by patients, advocates, and researchers.

Relapsing Polychondritis Foundation: Year in Review

Fueled by bold thinking, purposeful action, and inspiration, 2021 was a transformational year for patients with Relapsing Polychondritis (RP), the RP Foundation, and Race for RP.

Denise Stefanie Releases Original Song “All In” with Race for RP to Promote Relapsing Polychondritis Awareness and Research

The powerful piece, written, composed, and performed by Stefanie, aims to raise awareness and advance research for the rare autoimmune disease.

Relapsing Polychondritis Foundation to Present Poster Highlighting Establishment of Penn RP Program at the EULAR 2021 Virtual Congress

We’re pleased that a poster abstract about the founding and launch of the Penn RP Program (Philadelphia, PA) has been accepted for presentation by the European Alliance of Associations for Rheumatology (EULAR) 2021 Virtual Congress.

Relapsing Polychondritis Advocate Isabel Bautista Joins American College of Rheumatology Patient Perspectives Program Review Committee

Selected submissions are presented at the ACR annual meeting and published online and in Arthritis & Rheumatology, an official journal of the ACR.

Relapsing Polychondritis Patients and Advocates Emphasize the Benefits of Collaboration in Prestigious Patient Perspective Poster Program

This year’s American College of Rheumatology annual meeting featured five relapsing polychondritis (RP) patient poster submissions that were selected for presentation.