AHN Autoimmunity Institute launches novel research initiative aimed at paving way for new treatments, cure
PITTSBURGH – The Allegheny Health Network (AHN) Autoimmunity Institute, in partnership with the Relapsing Polychondritis Foundation, today announced that it has launched a nationwide, first-of-its-kind study, known as ‘Patients’ Universal Relapsing Polychondritis Open Specimen Endeavor’ (PURPOSE).
Denise Stefanie Song “I Will Fight” and Relapsing Polychondritis Documentary The Race of Our Lives Win IMPACT DOCS Awards
Talented singer-songwriter Denise Stefanie’s powerful anthem “I Will Fight,” featured in the film The Race of Our Lives, was honored with the Award of Excellence for Original Song by the IMPACT DOCS Awards on February 6, 2024, in La Jolla, California.
Film About Relapsing Polychondritis Research, The Race of Our Lives, Wins Best Documentary Feature at Los Angeles Movie Awards
The Race of Our Lives was awarded Best Documentary Feature by the Los Angeles Movie Awards, held at the Hudson Theater in Hollywood, California on January 14, 2024.
2023 End of Year Updates and Appeal
As we gather with family and friends to celebrate the holidays and 2023’s successes, we’re also looking forward to the future.
Documentary Film The Race of Our Lives to Be Screened at Culver City Film Festival
New York – November 29, 2023 – The Relapsing Polychondritis (RP) Foundation is pleased to announce the Culver City Film Festival will be hosting a screening of director Roy Medawar’s documentary, The Race of Our Lives.
Documentary Film The Race of Our Lives Focuses Lens on Relapsing Polychondritis Foundation, Racing, and Research
New York – October 18, 2023 – This information is from the Relapsing Polychondritis Foundation Inc. (RP Foundation) with Race for RP. The Relapsing Polychondritis (RP) Foundation is pleased to announce the release of The Race of Our Lives, a documentary directed by Roy Medawar.
RP and Related Autoimmune Disease Research Update
We are pleased to share that the RP Foundation is bringing RP and related autoimmune diseases to the forefront of ground-breaking scientific discoveries, thanks to the concerted efforts of the talented researchers that we’re investing in. Here’s an update from our partners on what they’ve been working on for the past 6 months.
Premiering Soon: ‘The Ride of Our Lives’ RP Documentary
The Ride of My Life documentary features Nancy Linn’s journey toward being diagnosed with Relapsing Polychondritis and her commitment to turn this potentially dire diagnosis into something positive by “living with purpose.”
2023 SILO Race for Research Event
Thank you to everyone who attended this one-of-a-kind event that rasied over $26,000 for RP and related autoimmune research.
Relapsing Polychondritis Foundation Renews Partnership with NYU Grossman School of Medicine to Invest in Next Phase of VEXAS Research
The Relapsing Polychondritis (RP) Foundation is pleased to announce it will continue and expand its partnership with NYU Grossman School of Medicine to invest in and advance the next phase of collaborative VEXAS research.
New Study by Relapsing Polychondritis Foundation Research Partners Shows VEXAS Syndrome May Be More Common Than Many Other Inflammatory Conditions
New York – January 25, 2023 – This information is from the Relapsing Polychondritis Foundation Inc. (RP Foundation) with Race for RP.
A new study by investigators from the National Institutes of Health (NIH) and New York University Grossman School of Medicine (NYU Grossman), published online in the Journal of the American Medical Association (JAMA) on January 24, found that the recently discovered inflammatory disease VEXAS syndrome is more common than previously understood.
Relapsing Polychondritis Foundation Announces Appointment of Frances Sweeney to Board of Directors
The Relapsing Polychondritis Foundation (RP Foundation) is pleased to announce the appointment of Frances “Fran” Sweeney to its Board of Directors effective December 11, 2022.