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A Toast to Progress: Celebrating the Advancements You Made Possible

As we reflect on this past year, we want to thank you for standing with the RP Foundation and helping advance our mission: to fuel scientific discoveries and collaborations that will bring us closer to a cure for relapsing polychondritis. Your generosity has accelerated research, expanded patient access to specialty care, and strengthened the global network of experts working to improve the lives of people living with Relapsing Polychondritis (RP).

Relapsing Polychondritis Foundation Announces Leadership Transition: Nancy Linn to Chair Emerita, Neil Langberg Named New Chair for Two-Year Term

The Relapsing Polychondritis Foundation (RP Foundation) announces a transition in its Board leadership. After serving with distinction as Chair, Nancy Linn will assume the honorary title of Chair Emerita. The Foundation extends its deepest gratitude to Nancy for her visionary leadership, tireless advocacy, and unwavering commitment to advancing research and awareness for relapsing polychondritis. Simultaneously, Neil Langberg has been elected to the position of Chair of the Board, embarking on a new two-year term.

2025 Warrior Walk for Relapsing Polychondritis Sets Records

The Relapsing Polychondritis Foundation proudly announces the record-breaking success of the 2025 Warrior Walk for Relapsing Polychondritis — a nationwide virtual campaign dedicated to raising funds and awareness for this rare autoimmune disease. In just two weeks, the Foundation surpassed its fundraising goal, generating over $25,000, supported by an unprecedented number of new donors and returning participants.

Relapsing Polychondritis Foundation Continues to Advance RP Research Through Additional Investments in the PURPOSE Biobank

The RP Foundation is pleased to share an exciting new initiative that we’re continuing to invest in – the PURPOSE Biobank and Data Repository, that we believe will advance RP and related autoimmune disease research. PURPOSE Biobank is a unique direct-to-patient initiative to collect blood specimens and medical information from individuals with RP and related autoimmune diseases with the goal of accelerating the discovery of improved diagnostic tests, therapies and ultimately a cure.

Race for RP partners with McLaren Trophy America for inaugural season

McLaren Trophy America is proud to welcome Race for RP as an official championship partner as the series expands into the United States for the 2025 season. The partnership, which aims to raise awareness and funds for Relapsing Polychondritis, a rare and degenerative autoimmune disease, ensures that all competing cars will feature Race for RP branding starting at the season opener in Sonoma, California.  In addition, the organization will enjoy additional presence in the paddock and promotional activations—including a charity auction to support vital research.

Race for RP Awareness Driver Changes Gears

The Relapsing Polychondritis Foundation extends its heartfelt appreciation to Neil “Neilio” Langberg for his pivotal role as a Race for RP ambassador in the Ferrari Challenge series. As a renowned driver and brand ambassador, Neil’s unwavering dedication to raising awareness for Relapsing Polychondritis (RP) has had a profound impact on patients, caregivers, and researchers across the globe. Read more to see a personal message from “Neilio”.

2024 End-of-Year Message from the RP Foundation

As the holiday season draws to a close, we reflect on the immense progress and collective achievements made throughout 2024. The RP Foundation extends our heartfelt appreciation to our incredible donors, motorsports partners, clinical researchers, and patients with RP. Your steadfast support, compassion, and collaboration have been vital in driving forward our mission to support RP-focused initiatives in the three key pillars of awareness, education, and research.