Collecting this data will advance the goal of standardizing definitions of RP to create uniform groups of patients with key shared features for clinical research and may also provide context to aid in diagnosis....
Awareness-Raising on Steroids: Rheumatologists and Researchers in Illinois Help Make a One-in-a-Million Disease, Relapsing Polychondritis, the State’s Top Google Search
Awareness is a goal for most disease-focused organizations, but is especially crucial for the Relapsing Polychondritis Awareness and Support Foundation (RPASF), which highlights a difficult-to-diagnose autoimmune disease that reportedly affects less than one to 3.5 people per million. Making a rare disease part of the public consciousness is a challenging feat, but…...
Primary Care Physicians Now Have Resources to Diagnose a Rare Autoimmune Disease: Relapsing Polychondritis
A primary care physician sees a patient with unexplainable symptoms: a combination of general malaise, low grade fever, redness and pain on the eyes, inflammation and pain in the ear, shortness of breath, pain and redness on the nose, skin lesions, joint pain, rib pain, hearing loss, dry cough, and…...
Flying the Checkered Flag for Autoimmune Disease Awareness, Kyle Marcelli Races to Mid-Ohio after Back-to-Back Victories in 2018
On May 3, Kyle Marcelli will return to Mid-Ohio SportsCar Course after last year’s “Cinderella story,” back-to-back IMSA victories. During the IMSA Continental Tire SportsCar Challenge race in 2018, Kyle Marcelli and Nate Stacy overcame a weak starting position and a last-minute scare to drive their #60 KohR Motorsports / Roush Performance Ford Mustang GT4 across the finish…...
Kyle Marcelli Wins AARDA Champion Award for his Drive to Eradicate Autoimmune Diseases
On May 11, race car driver Kyle Marcelli will be honored for his advocacy work with the Champion Award from the American Autoimmune Related Diseases Association (AARDA). At the organization’s yearly spring benefit, hosted at the Detroit Athletic Club and aptly themed “Bound by a Common Thread,” attendees will celebrate…...
Pittsburgh’s Allegheny Health Network Centralizes All Care for Autoimmune Disorders
Autoimmune diseases require a uniquely holistic plan of attack. If you have relapsing polychondritis or “RP”, there’s a 30% chance that you have an additional autoimmune disorder. Given RP affects the whole body and many organs, treatment may require a team of specialists, from a rheumatologist to treat swollen joints…...
The 4th Los Angeles Autoimmune Walk
The 4th annual Los Angeles Autoimmune Walk will be taking place on Saturday, November 17th at 11am. The date is fast approaching and we need you to help reach our fundraising goal. Please register to walk with the RP Team for the benefit of AARDA and the Relapsing Polychondritis Awareness and Support Foundation…...
