Awareness-Raising on Steroids: Rheumatologists and Researchers in Illinois Help Make a One-in-a-Million Disease, Relapsing Polychondritis, the State’s Top Google Search
Awareness is a goal for most disease-focused organizations, but is especially crucial for the Relapsing Polychondritis Awareness and Support Foundation (RPASF), which highlights a difficult-to-diagnose autoimmune disease that reportedly affects less than one to 3.5 people per million. Making a rare disease part of the public consciousness is a challenging feat, but thanks to RPASF’s advocacy work, […]
Primary Care Physicians Now Have Resources to Diagnose a Rare Autoimmune Disease: Relapsing Polychondritis
A primary care physician sees a patient with unexplainable symptoms: a combination of general malaise, low grade fever, redness and pain on the eyes, inflammation and pain in the ear, shortness of breath, pain and redness on the nose, skin lesions, joint pain, rib pain, hearing loss, dry cough, and wheezing. However, inflammation tests read […]
Flying the Checkered Flag for Autoimmune Disease Awareness, Kyle Marcelli Races to Mid-Ohio after Back-to-Back Victories in 2018
On May 3, Kyle Marcelli will return to Mid-Ohio SportsCar Course after last year’s “Cinderella story,” back-to-back IMSA victories. During the IMSA Continental Tire SportsCar Challenge race in 2018, Kyle Marcelli and Nate Stacy overcame a weak starting position and a last-minute scare to drive their #60 KohR Motorsports / Roush Performance Ford Mustang GT4 across the finish line first. “I got in […]
Kyle Marcelli Wins AARDA Champion Award for his Drive to Eradicate Autoimmune Diseases
On May 11, race car driver Kyle Marcelli will be honored for his advocacy work with the Champion Award from the American Autoimmune Related Diseases Association (AARDA). At the organization’s yearly spring benefit, hosted at the Detroit Athletic Club and aptly themed “Bound by a Common Thread,” attendees will celebrate Marcelli’s success as an ambassador […]
Pittsburgh’s Allegheny Health Network Centralizes All Care for Autoimmune Disorders
Autoimmune diseases require a uniquely holistic plan of attack. If you have relapsing polychondritis or “RP”, there’s a 30% chance that you have an additional autoimmune disorder. Given RP affects the whole body and many organs, treatment may require a team of specialists, from a rheumatologist to treat swollen joints to a nephrologist to check […]
The 4th Los Angeles Autoimmune Walk
The 4th annual Los Angeles Autoimmune Walk will be taking place on Saturday, November 17th at 11am. The date is fast approaching and we need you to help reach our fundraising goal. Please register to walk with the RP Team for the benefit of AARDA and the Relapsing Polychondritis Awareness and Support Foundation Inc. (RPASF), and give a gift to help us […]
Relapsing Polychondritis Researcher Dr. Marcela A. Ferrada is Slated to Receive a Distinguished Fellow Award From the American College of Rheumatology
New York, NY – October 5th, 2018 – RPASF and Race for RP extended their congratulations to Marcela A. Ferrada, MD for her Distinguished Fellow Award from the American College of Rheumatology (ACR). Dr. Ferrada is a leading researcher into relapsing polychondritis – a debilitating autoimmune disease in which the immune system misfires, attacking cartilage […]
Community Health Event at Allegheny Health Network’s Autoimmunity Institute to Shine Light on Relapsing Polychondritis
Relapsing Polychondritis Awareness and Support Foundation Inc. (RPASF) and Race for RP encourage the community to attend this event at Allegheny Health Network (AHN) in Pittsburgh featuring the nation’s foremost authorities on autoimmune diseases New York, NY, September 21, 2018 – The Relapsing Polychondritis Awareness and Support Foundation (RPASF), together with Race for RP, announced today their […]
PV Concours 2018: Relapsing Polychondritis Teams Drive Awareness at 25th Annual Car and Airplane Exhibition
Relapsing Polychondritis Awareness and Support Foundation Inc. (RPASF) is pleased to join the Race for RP, a platinum sponsor for the upcoming PV Concours, to increase awareness about relapsing polychondritis, a debilitating autoimmune disease that attacks a patient’s cartilage. Torrance, California – September 19, 2018 – RPASF and Race for RP continue their drive to […]
Team RPASF Has a Successful Outing at the New York Autoimmune Walk
The New York Autoimmune Walk was a big success for team RPASF. We had a wonderful time joining together with other teams and individual for a common goal to raise awareness about autoimmune diseases, relapsing polychondritis and raise funds for the advancement of research, treatment and patient care. Thank you to everyone who supported team […]
Relapsing Polychondritis Sufferers Get a Boost As Non-Profit Organization Continues Major Drive to Accelerate Research and Awareness
The Relapsing Polychondritis Awareness and Support Foundation Inc. (RPASF) mission is to support research to find a cure for a painful and chronic autoimmune disease that few physicians have heard of – and since July, with its newly elected members, the board of directors has gone all-out to give sufferers hope with a whirlwind of […]
Dr. Jane H. Buckner, President of the World-Renowned Benaroya Research Institute at Virginia Mason (BRI), and Her Outstanding, Highly-Skilled Team Are Driving to Eliminate All Autoimmune and Immune System Disorders
On Friday August 24th, the Virginia Mason Foundation hosted “Grapes on the Green” at The Golf Club at Newcastle to benefit the Benaroya Research Institute. The event was fantastic and successful – with nearly $500,000 raised to support medical research! It was inspiring to listen to Dr. Buckner (pictured here with Nancy and the Ferrari […]