What Is Relapsing Polychondritis?
Relapsing polychondritis (RP) is a systemic inflammatory disease of unknown etiology that can be fatal. The disease affects multiple organs, particularly cartilaginous structures such as the ears, nose, airways and joints as well as eyes, skin, heart valves and brain.
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Whether you are a newly diagnosed patient, spouse or significant other, parent or other family member of a patient, we are here to help.
We are a patient-founded and patient-driven 501(c)3 non-profit foundation which strives to raise awareness about RP and educate the public, as well as represent patients to the global medical community and support medical research toward a cure.
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We strive to provide news related to our progress and efforts as a foundation, important updates and accomplishments of our affiliated and partnership organizations as well as pertinent news we believe impacts patients within the autoimmune disease community and beyond. The sharing or posting of any news does not imply an endorsement of related statistics or confirmation of medical research or information.
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The Canadian Society for Relapsing Polychondritis is doing a fantastic job representing the RP community here at the 2019 American College of Rheumatology Annual Meeting in Atlanta.
Thank you Gonnie Imeson and Denise Lau for your great work raising awareness, promoting education and providing patient support to those suffering from relapsing polychondritis.
Learn more at www.polychondritis.ca
#CANforRP #CSRP #RaceforRP #RelapsingPolychondritis Race for RP - "Relapsing Polychondritis"
Thank you for your hard work to raise awareness among medical professionals regarding RP. Those of us who live with this difficult disease find the lack of informed physicians and other healthcare workers we encounter along our journey very frustrating and discouraging.
Thankyou for all that you are doing for relapsing polychondritis 👏💋
Thank you ladies for all you are doing to bring awareness to RP.
Is there any society for relapsing polychondritis in Ireland
There are not enough words in the dictionary to express my gratitute
Race for RP - "Relapsing Polychondritis"
A shout out to our friends and partners at the The Canadian Society for Relapsing Polychondritis from Dr. Marcela Ferrada, here at the 2019 ACR Annual Meeting. Drop by booth No. 8412 to learn more from two fantastic representatives, Gonnie Imeson and Denise Lau, about the important work they are doing to raise awareness, promote education and provide patient support to those suffering from relapsing polychondritis.
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Thank you, CSRP! Learn more at www.polychondritis.ca
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The American College of Rheumatology’s 2019 Annual Meeting brings together close to 16,000 rheumatologists, rheumatology health professionals, fellows-in-training, and exhibitors from more than 100 countries.
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#CANforRP #RelapsingPolychondritis #RaceforRP #ACR19 American College of Rheumatology
Thank you for visiting the Patient Perspective Poster session today during the 2019 ACR/ARP annual meeting to see Nancy presenting on her abstract. The abstract was submitted in association with the Relapsing Polychondritis Foundation as the sponsoring organization and was one of just ten patient perspectives selected by the American College of Rheumatology / Association of Rheumatology Professionals (ACR/ARP) Abstract Selection Committee. It is titled, “Race for Relapsing Polychondritis Drives Awareness, Accelerates Research, and Improves the Quality of My Life: How Motorsports Help Me Overcome the Hopelessness of an Incurable, Rare Disease,” and is currently available online at, http://bit.ly/ACR19_RaceforRP. The digital poster will be on display and accessible to all conference attendees throughout the duration of the 2019 ACR/ARP annual meeting in this high traffic area of the convention center. Thank you, Nancy, for this incredible contribution supporting relapsing polychondritis awareness, education and research. #RaceforRP #RelapsingPolychondritis #ACR19
I am so proud to be able to know, respect, and congratulate Nancy! What a spectacular contribution on behalf of our RP community!! I can only imagine how much work was put into something so special, and it will transcend for all current and future patients and their families.
Race for RP - "Relapsing Polychondritis"
Nancy will be presenting on her abstract today Sunday, November 10, 12:15pm – 12:45pm in the Patient Perspective Poster Session display outside of the Sidney Marcus Auditorium. In addition to this time, the digital poster will be on display and accessible to all attendees throughout the duration of the 2019 ACR/ARP annual meeting in this high traffic area of the convention center. Please join us in supporting Nancy on this important achievement as we continue our mission to drive awareness and accelerate research for relapsing polychondritis. Click on the article in the below link to see the Patient Perspective Poster. #RelapsingPolychondritis #RaceforRP #ACR19 http://bit.ly/ACR_RaceforRP2 1#CANforRPWe dropped by to see our friends and partners at the Canadian Society for Relapsing Polychondritis. They have quite an engaging booth here at the 2019 American College of Rheumatology Annual Meeting in Atlanta, and are represented by two fantastic advocates, Gonnie Imeson and Denise Lau. Please visit their booth No. 8412 to learn more about the great work they are doing raising awareness, promoting education and providing patient support to those suffering from relapsing polychondritis. Thank you, CSRP! Learn more at www.polychondritis.ca The American College of Rheumatology’s 2019 Annual Meeting will bring together close to 16,000 rheumatologists, rheumatology health professionals, fellows-in-training, and exhibitors from more than 100 countries. #CANforRP #RelapsingPolychondritis #RaceforRP #ACR19 The Canadian Society for Relapsing Polychondritis American College of Rheumatology
Deb Patrick and Dave Bammert of AARDA along with other staff members are at the ACR representing all #AutoimmuneWarriors! This is one of the largest conferences we attend, to connect with other #AutoimmuneDisease experts & patient leaders in research, awareness, and advocacy.
A shout out to The Canadian Society for Relapsing Polychondritis from Dr. Marcela Ferrada, here at the 2019 @ACRheum Annual Meeting. @CANforRP
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Thank you, CSRP! Learn more at https://t.co/BWvEYWJwFx
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#CANforRP #ACR19 #RelapsingPolychondritis
The Exhibit Hall opens at 10:00 AM today! Come see us! #ACR19
Race for Relapsing Polychondritis Drives Awareness, Accelerates Research, and Improves the Quality of My Life: How Motorsports Help Me Overcome the Hopelessness of an Incurable, Rare Disease
Race for Relapsing Polychondritis Drives Awareness, Accelerates Research, and Improves the Quality of My Life: How Motorsports Help Me Overcome the Hopelessness of an Incurable, Rare Disease - ACR Meeting Abstracts
Background/Purpose: Like many other patients with a rare disease, I felt relieved when I finally received a diagnosis: relapsing polychondritis or ...
acrabstracts.org
It is great to be here at #ACR19. Thank you, @ACRheum!
#RaceforRP #RelapsingPolychondritis
Amy Kane on Twitter
”Patient Perspective presenters ready to meet #ACR19 attendees! Stop by outside the Sindney Marcus auditorium in Building A between 11:30-1:30 t...
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Great to see the GS Champions @WestphalRacing and @tylermcquarrie honored for their incredible season! Congratulations! Thanks to the team for supporting the #RaceforRP!
Michelin Racing USA on Twitter
”ð¸ About last night. The @IMSA @MichelinUSA Pilot Challenge champs are here. ðð¤ð¤£ GS: @TylerMcQuarrie @WestphalRaci...
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