What Is Relapsing Polychondritis?
Relapsing polychondritis (RP) is a systemic inflammatory disease of unknown etiology that can be fatal. The disease affects multiple organs, particularly cartilaginous structures such as the ears, nose, airways and joints as well as eyes, skin, heart valves and brain.
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20
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2019
NMU School of Nursing Autoimmunity Symposium
The Relapsing Polychondritis Foundation is pleased to join the Allegheny Health Network (AHN) Autoimmunity Institute and the American Autoimmune Related…
Patient Information
Whether you are a newly diagnosed patient, spouse or significant other, parent or other family member of a patient, we are here to help.
We are a patient-founded and patient-driven 501(c)3 non-profit foundation which strives to raise awareness about RP and educate the public, as well as represent patients to the global medical community and support medical research toward a cure.
Learn MoreLatest Foundation News
We strive to provide news related to our progress and efforts as a foundation, important updates and accomplishments of our affiliated and partnership organizations as well as pertinent news we believe impacts patients within the autoimmune disease community and beyond. The sharing or posting of any news does not imply an endorsement of related statistics or confirmation of medical research or information.
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Race for RP - "Relapsing Polychondritis"
The Race for RP - "Relapsing Polychondritis" has joined with Northern Michigan University School of Nursing to present: A Symposium Exploring Autoimmune Diseases. On September 20, 2019 at the start of their 50th Anniversary Celebration and homecoming weekend, the Doctor of Nursing Practice Program and Race for RP, along with the Relapsing Polychondritis Foundation, the Allegheny Health Network Autoimmunity Institute and American Autoimmune Related Diseases Association (AARDA), will bring together world-class researchers and leading experts on autoimmunity to address the latest developments, research and treatment efforts surrounding autoimmune diseases. Intended to reach primary care physicians, advanced practice providers and registered nurses, the symposium offers 3 complimentary nursing CEU’s from the NMU School of Nursing or 3 CME’s courtesy of UP Health System - Marquette. Relapsing polychondritis and other autoimmune disease patients are encouraged to attend. Keynote speakers include: Susan Manzi, MD, MPH Joseph Ahearn, MD Emily Somers, PhD, ScM We are committed to advancing a broader conversation to transform the diagnosis and care of patients with autoimmune diseases. We continue our collaborative approach driving innovative research, education and supporting clinical trials in our relentless pursuit of a cure. For more information, full schedule and agenda, detailed keynote speaker information and to register, please visit, https://raceforrp.org/nmu-school-of-nursing-autoimmunity-symposium/ or click on the link below. NMU School of Nursing Relapsing Polychondritis Awareness and Support Foundation #RaceforRP #RelapsingPolychondritis #AutoimmuneDisease #AutoimmuneDiseases #Autoimmune #Autoimmunity
I am so glad for this! As a person with RP I have had so many doctors who don’t know much about this!! My rheumatologist had never seen a case of it , and had never seen an ear flair up as mine does. It flared up and I went in to see him and he and about 5 doctors came in to look at it.
This looks amazing, well done & thank you to all involved in putting this 2gether. Wish I could attend.
Are any of the patients going to this?
Tune-in Alert! Watch the national broadcast of the IMSA Michelin Pilot Challenge from Road America today at 3pm ET on NBCSN. (set your DVRs) Watch Race for RP - "Relapsing Polychondritis" brand ambassador and autoimmune disease awareness champion Kyle Marcelli with co-driver Nate Stacy Racing piloting the KohR Motorsports No. 60 FORGELINE Ford Mustang GT4. See the Carbahn Autoworks Peregrine Racing No. 39 Audi R8 GT4, which carries the Race for Relapsing Polychondritis logo, co-driven by Tyler McQuarrie and Jeff Westphal starting the race in pole. And congratulations to Race for RP driver Jon Morley with co-driver Gavin Ernstone who piloted to Road Shagger Racing eEuroparts.com No. 61 Audi RS 3 to a P3 finish in the TCR class. We’re thrilled for the national coverage and exposure today's broadcast brings to relapsing polychondritis (RP) and autoimmune disease awareness. #RaceforRP #RelapsingPolychondritis #Autoimmune #AutoimmuneDisease #IMPC #IMSA #RoadAmerica Michelin NBC Sports
We are pleased to share our new online donation platform available through the below link and on our new website, www.polychondritis.org.
Relapsing polychondritis (RP) is a rare, debilitating autoimmune disease that affects three to five people per million. RP is difficult to diagnose because of the insidious onset and variable severity and frequency of symptoms. RP Patients face unique diagnostic and treatment challenges and often require a multidisciplinary medical team in order to provide the best possible care.
The Relapsing Polychondritis Foundation’s purpose is to increase awareness about relapsing polychondritis (RP); provide support (primarily through the use of the internet, social media, and patient advocacy programs) for those who are affected by RP; promote quality care for RP patients; and support research to advance a cure for RP.
Your donation will support relapsing polychondritis (RP) research and those affected by this autoimmune disorder.
Thank you!
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#RelapsingPolychondritis
Donate to the Relapsing Polychondritis Foundation
give.polychondritis.org
Your donation will support relapsing polychondritis (RP) research and those affected by this autoimmune disorder.It's race day here at Road America for the next round of the IMSA Michelin Pilot Challenge. Watch it live on IMSA.tv at 5pm ET. The No. 39 co driven by Tyler McQuarrie and Race for RP driver Jeff Westphal has qualified in P1 so keep your eyes on this duo, currently the GS point leaders in the championship. The Carbahn Autoworks Peregrine Racing No. 39 carries the Race for RP logo on the side of the Audi GT4, and this coverage and exposure will be fantastic for relapsing polychondritis and autoimmune disease awareness. Race for RP brand ambassador and autoimmune disease awareness advocate, Kyle Marcelli (recipient of American Autoimmune Related Diseases Association (AARDA)'s 2019 Champion Award) along with co-driver Nate Stacy Racing have qualified in P6 piloting the KohR Motorsports No. 60 FORGELINE Ford Mustang GT4, which carries the Race for RP logo on the side and wing of the car. Thank you to the team for your incredible support, we'll be cheering you on throughout the race. And a shout out to Race for RP driver Jon Morley who qualified in P10 and currently sits in third place overall in TCR for the championship. We are looking forward to watching Jon make some more amazing moves behind the wheel of the Road Shagger Racing eEuroparts.com No. 61 Simply Vegas Commercial Real Estate Audi RS 3. Good luck to all the Race for RP drivers and teams in the Michelin Pilot Challenge. #RaceforRP #RelapsingPolychondritis #Autoimmune #AutoimmuneDisease #RoadAmerica #IMSA #IMPC Michelin Michelin Motorsport
On May 26, 2019 relapsing polychondritis (RP) and autoimmune disease awareness rose to a new level during the 103rd running of the Indianapolis 500. It was fantastic to see the the Race for Relapsing Polychondritis brand carried on the No. 63 Chevrolet during this single largest one-day sporting event in the world, with over 400,000 people in attendance and 5 million viewers around the world.
Thank you to the teams, Ed Carpenter Racing and Scuderia Corsa along with drivers Ed Carpenter, Spencer Pigot and Ed Jones Racing, for your support of Race for RP - "Relapsing Polychondritis". It was an extraordinary and unforgettable experience, from the emotional opening ceremony and driver introductions, through the entire live broadcast on NBC. The Race for RP is so grateful to have participated in the “Greatest Spectacle in Racing” which was significant to our mission of driving awareness about relapsing polychondrits and accelerating autoimmune disease research.
There are over 100 autoimmune diseases which affect upwards of 50 million Americans. Some are rare like relapsing polychondritis (RP) or ankylosing spondylitis (AS), and some are more common such as celiac disease, multiple sclerosis or psoriasis. But we are in this together and it was an important milestone to have our story told on this global platform.
Please share this video as we continue to raise awareness and advance research efforts for autoimmune diseases which affect so many of us!
#RaceforRP #MustBeMay #ThisIsMay #IndyCar #Indy500 #RelapsingPolychondritis #Polychondritis #AutoimmuneDisease #AutoimmuneAwareness #Autoimmune #AutoimmuneWarrior #Autoimmunity #AutoimmuneDiseases #IndyCar Indianapolis Motor Speedway NTT IndyCar Series American Autoimmune Related Diseases Association (AARDA) Autoimmune Disease List Autoimmune Wellness Allegheny Health Network Crohn's & Colitis Foundation Graves' Disease and Thyroid Foundation Surviving Graves Disease Natural Solutions For Graves' Disease & Hashimoto's Thyroiditis Lupus Foundation of America National Multiple Sclerosis Society National Psoriasis Foundation Relapsing Polychondritis Awareness and Support Foundation RheumatoidArthritis.net Rheumatoid Arthritis Warrior National Rheumatoid Arthritis Society (NRAS) Sjögren's Syndrome Foundation Type 1 Diabetes Support and Information Vasculitis Foundation National Ankylosing Spondylitis Society Beyond Celiac Celiac Disease Foundation Guillian-Barre' Syndrome/CIPD Awareness Scleroderma Foundation Psoriatic-Arthritis.com Benaroya Research Institute at Virginia Mason
Ty for your support!
I am humbled amd moved that RP is supported. Brings me to tears. Thank you.
We’re looking forward to watching the national broadcast of the Michelin Pilot Challenge from @roadamerica. #RaceforRP #RelapsingPolychondritis #AutoimmuneDisease #Autoimmune #imsa #impc @RPASF_Official @WestphalRacing @KyleMarcelli
Michelin Racing USA on Twitter
”TODAY! Watch and/or DVR the thrilling #IMPC race from @RoadAmerica at 3 p.m. ET on NBCSN. #IMSA / #RoadAmerica / @MichelinUSA”
twitter.com
We are pleased to share our new online donation platform available through this link and on our new website, https://t.co/xqkfCpXq8T. #RelapsingPolychondritis #RaceforRP #Polychondritis #AutoimmuneDisease #Autoimmune https://t.co/GuMnuLnn2t
We're excited to share our new video, #RaceforRP at the #Indy500. #RelapsingPolychondritis #AutoimmuneDisease #Autoimmune #Lupus #Psoriasis #RheumatoidArthritis #Vasculitis #Celiac #Crohns #IndyCar @AARDATweets @Scuderia_Corsa @IndyCaronNBC @IMS @IndyCar
Race for Relapsing Polychondritis at the 2019 Indianapolis 500
On May 26, 2019 relapsing polychondritis (RP) and autoimmune disease awareness rose to a new level during the 103rd running of the Indianapolis 500. I...
www.vidrise.com
P2 Podium Finish for @RaceforRP driver @WestphalRacing and @tylermcquarrie in the No. 39 Audi R8 in @IMSA @MichelinRaceUSA Pilot Challenge at @limerockpark. #RaceforRP #RelapsingPolychondritis #AutoimmuneDisease #IMPC #IMSA @MichelinUSA @RPASF_Official
With a P2 Podium Finish at Lime Rock, Race for Relapsing Polychondritis (RP) Driver Jeff Westphal now leads the GS Championship in the IMSA Michelin Pilot Challenge -
A big congratulations to Race for Relapsing Polychondritis (RP) driver Jeff Westphal for his P2 Podium Finish in the IMSA Michelin Pilot Chal...
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Forgeline Connects Own 25th Anniversary to IMSA 50th Anniversary Celebration
Read: https://t.co/duxnOx0pIm
Thank you @WestphalRacing for sporting the Race for RP #RelapsingPolychondritis logo on the side of the No. 39 Audi R8 GT4 and driving awareness during the @IMSA @MichelinRaceUSA Pilot Challenge at @CTMPOfficial , co-driven by @tylermcquarrie. @MichelinUSA #RaceforRP #CTMPLife
Congratulations on the P2 Podium finish to the @KohR_MS @ForgelineWheels @PolitoFord No. 60 driven by @KyleMarcelli and @NateStacyRacing at @CTMPOfficial in the @IMSA @MichelinUSA Pilot Challenge. #RaceforRP #RelapsingPolychondritis #Autoimmune #CTMPLife #IMPC @MichelinRaceUSA
