What Is Relapsing Polychondritis?

Relapsing polychondritis (RP) is a systemic inflammatory disease of unknown etiology that can be fatal. The disease affects multiple organs, particularly cartilaginous structures such as the ears, nose, airways and joints as well as eyes, skin, heart valves and brain.

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RP PATIENT SURVEY: AUTOIMMUNE AND COVID-19

When it comes to how the rapidly spreading coronavirus (COVID-19) is affecting people with vasculitis, medical experts agree there are more questions than answers – at least right now.

To address that concern, the Relapsing Polychondritis Foundation, the Vasculitis Foundation (VF),  and the Vasculitis Patient Powered Research Network (VPPRN) have teamed up with partners in the Autoimmune Research Collaborative (ARC) to launch a new COVID-19 patient study.

We want to know your concerns.  Please participate in the patient research survey: Autoimmune and COVID-19.  Your participation will help researchers, clinicians and other patients better understand how people with relapsing polychondritis and other forms of vasculitis are dealing with COVID-19 / the novel coronavirus.

To get started, please go to: www.vasculitisfoundation.org/rp_vasccovid-19/

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Patient Information

Whether you are a newly diagnosed patient, spouse or significant other, parent or other family member of a patient, we are here to help.

We are a patient-founded and patient-driven 501(c)3 non-profit foundation which strives to raise awareness about RP and educate the public, as well as represent patients to the global medical community and support medical research toward a cure.

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Latest Foundation News

We strive to provide news related to our progress and efforts as a foundation, important updates and accomplishments of our affiliated and partnership organizations as well as pertinent news we believe impacts patients within the autoimmune disease community and beyond. The sharing or posting of any news does not imply an endorsement of related statistics or confirmation of medical research or information.

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Race For RP

Driving Awareness

The Race for RP supports research, awareness programs, and care for those who are affected by relapsing polychondritis (“RP”) and related diseases. Our drivers our passionate about raising awareness for the autoimmune disease community and RP. While our drivers race for RP, our organization is speeding to find a cure. We’re working to facilitate research and studies to help diagnose, prevent and cure Relapsing Polychondritis, and its related diseases. Whether you’re a professional driver, amateur racer, or a weekend warrior passionate about racing, we encourage you to connect with us to discover how you can Race for RP.

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Expert doctors, relapsing polychondritis (RP) patients, and advocates explain the need for new treatments and the importance of accelerating research on RP, a debilitating systemic inflammatory disease that is characterized by recurrent inflammation of cartilage and other tissues throughout the body.

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#RaceforRP #RelapsingPolychondritis Race for RP - "Relapsing Polychondritis"
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Cheers to our hard working researchers and advocates of RP. God bless you all. 🙏🙏

Thank you 🙏🏻

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Expert doctors, relapsing polychondritis (RP) patients, and advocates explain the need for new treatments and the importance of accelerating research.
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Please share this video on social media.

#RaceforRP #RelapsingPolychondritis

The Need for New Treatments for Relapsing Polychondritis and the Next Steps

www.vidrise.com

As a professor at Hacettepe University, a leading university in Turkey, Dr. Ömer Karadağ is well-versed in RP and is a crucial part of the International Relapsing Polychondritis Research Network (IRPRN).

Thank you, Dr. Karadağ!

@Hacettepe1967 @RaceforRP

RP Research Scientist Spotlight: Ömer Karadağ, MD - Relapsing Polychondritis

As the Director of the Hacettepe University Vasculitis Center, Dr. Karadağ sees patients with relapsing polychondritis (RP) and other types of vascul...

polychondritis.org

Working with the National Institutes of Health as a pediatric #rheumatologist, Dr. Keith Sikora gets to see every pediatric patient with RP who walks through the @NIH clinic doors.

He’s truly on the front lines when it comes to #RelapsingPolychondritis.

RP Research Scientist Spotlight: Keith A. Sikora, MD - Relapsing Polychondritis

Working with the National Institute of Health as a pediatric rheumatologist, Dr. Keith Sikora gets to see every pediatric patient with RP who walks th...

polychondritis.org

“What is Relapsing Polychondritis?” features expert research scientist, Keith A. Sikora, MD, of the National Institutes of Health (@NIH).

Thank you, Dr. Sikora, for driving awareness and accelerating research about RP.
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#RaceforRP #RelapsingPolychondritis

Thank you to everyone who has participated in the Relapsing Polychondritis COVID-19 Patient Survey: Autoimmune and COVID-19.

If you haven’t yet completed the survey, please go to: https://t.co/p97T6UqK5L

@VasculitisFound @vpprn #RelapsingPolychondritis #RaceforRP

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