In the racing world, “send it” means to do something wholeheartedly, with confidence and absolute passion. Race for RP, the RP Foundation and our motorsports partners are “sending it” for RP patients and their families through profound and powerful research initiatives.
We’ve established the RP Program at the University of Pennsylvania to connect and engage some of the most creative and talented research scientists at UPenn, the National Institutes of Health (NIH) and the Vasculitis Clinical Research Consortium.
Together, our research scientists and clinicians will significantly improve care for patients with RP and advance the path to a cure.
On behalf of the RP patients and families we serve, thank you for your amazing support.
What Is Relapsing Polychondritis?
Relapsing polychondritis (RP) is a systemic inflammatory disease of unknown etiology that can be fatal. The disease affects multiple organs, particularly cartilaginous structures such as the ears, nose, airways and joints as well as eyes, skin, heart valves and brain.
Learn MorePatient Information
Whether you are a newly diagnosed patient, spouse or significant other, parent or other family member of a patient, we are here to help.
We are a patient-founded and patient-driven 501(c)3 non-profit foundation which strives to raise awareness about RP and educate the public, as well as represent patients to the global medical community and support medical research toward a cure.
Learn MoreLatest Foundation News
We strive to provide news related to our progress and efforts as a foundation, important updates and accomplishments of our affiliated and partnership organizations as well as pertinent news we believe impacts patients within the autoimmune disease community and beyond. The sharing or posting of any news does not imply an endorsement of related statistics or confirmation of medical research or information.
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Race For RP
Driving Awareness
The Race for RP supports research, awareness programs, and care for those who are affected by relapsing polychondritis (“RP”) and related diseases. Our drivers our passionate about raising awareness for the autoimmune disease community and RP. While our drivers race for RP, our organization is speeding to find a cure. We’re working to facilitate research and studies to help diagnose, prevent and cure Relapsing Polychondritis, and its related diseases. Whether you’re a professional driver, amateur racer, or a weekend warrior passionate about racing, we encourage you to connect with us to discover how you can Race for RP.
Learn MoreRP Foundation on Social Media
The RP Foundation and Race for RP are dreaming of a cure for Relapsing Polychondritis and treatments that profoundly improve patient lives.
Inspired into action, we’re actively investing in RP research initiatives that make our dream and the dreams of countless patients with RP a reality.
This Giving Tuesday, please fuel hope by making a donation at give.polychondritis.org/give/242230/#!/donation/checkout. Every dollar raised accelerates RP research and puts us firmly on the path to a cure. Thank you for your generosity and for supporting RP Research.
2 days ago
In the racing world, “send it” means to do something wholeheartedly, with confidence and absolute passion.
Race for RP, the Relapsing Polychondritis Foundation and our motorsports partners are “sending it” for RP patients and their families through profound and powerful research initiatives.
We’ve established the RP Program at the University of Pennsylvania to connect and engage some of the most creative and talented research scientists at UPenn, the National Institutes of Health (NIH) and the Vasculitis Clinical Research Consortium.
Together, our research scientists and clinicians will significantly improve care for patients with RP and advance the path to a cure.
On behalf of the RP patients and families we serve, thank you for your amazing support.
Giving Tuesday is a global day of generosity that will take place on December 1, 2020. This year, please visit: give.polychondritis.org/give/242230/#!/donation/checkout, to “send it” for RP Research.
#RaceforRP #RelapsingPolychondritis #givingtuesdaymilitary
3 days ago
As we reflect upon all of the things that we’re thankful for, the RP Foundation and Race for RP are grateful for everyone who has partnered with us to advance RP Research.
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#RaceforRP #RelapsingPolychondritis #givingtuesday2020
Race for RP - "Relapsing Polychondritis"
5 days ago
Thank you to our wonderful advocates! Without you, and your drive to succeed for us, we would be lost in the sea of despair. So, on behalf of the over 3000 members of the RP support groups, enjoy your Thanksgiving, make great memories, and know that our gratitude is always with you!!
The RP Foundation is pleased to share this important research breakthrough where NIH scientists, Drs. Peter Grayson and Dan Kastner, led an international team of researchers toward discovery of a new, adult-onset inflammatory disease abbreviated the VEXAS (vacuoles, E1 enzyme, X-linked, autoinflammatory, somatic) syndrome. This incredible team of scientists believes that understanding rheumatic diseases at the molecular level will foster the development of better diagnostic tests and significantly improve patient care.
Dr. Peter Grayson is the Principal Investigator of the Vasculitis Translational Research Program (VTRP) at the National Institutes of Health (NIH). The VTRP was established in 2013 to evaluate patients with known vasculitis or with clinical suspicion of vasculitis, including relapsing polychondritis (RP). In collaboration with the Kastner lab, VTRP discovered that VEXAS is causal in 8% of patients with RP.
#RelapsingPolychondritis #nih #research #RaceforRP
www.niams.nih.gov/newsroom/spotlight-on-research/nih-researchers-discover-new-inflammatory-diseas...
NIH Researchers Discover a New Inflammatory Disease Called VEXAS
niams.nih.gov
NIH scientists led an international team of researchers toward discovery of a new, adult-onset inflammatory disease abbreviated the VEXAS (vacuoles, E1 enzyme, X-linked, autoinflammatory, somatic) syndrome.3 weeks ago
Race for RP - "Relapsing Polychondritis"Race for Relapsing Polychondritis (RP) and our motorsports partners are capturing imagination and lending support to advance RP research and the pathway to better care or even a cure. ⠀⠀⠀⠀⠀⠀⠀⠀ #RaceforRP #RelapsingPolychondritis Relapsing Polychondritis Foundation
4 weeks ago
The RP Foundation and @RaceForRP are dreaming of a cure for Relapsing Polychondritis and treatments that profoundly improve patient lives.
This #GivingTuesday, please fuel hope at Give@polychondritis.org. Every dollar raised accelerates RP research and the path to a cure.
In the racing world, “send it” means to do something wholeheartedly, with confidence and absolute passion.
This #GivingTuesday, please visit: to "send it" for RP patients and their families through profound and powerful research initiatives.
Thank you! https://t.co/cl4HrrWF2k
As we reflect upon all of the things that we’re thankful for, the RP Foundation and Race for RP are grateful for everyone who has partnered with us to advance RP Research.
#RaceforRP #RelapsingPolychondritis #GivingTuesday @RaceForRP
This incredible team of scientists believes that understanding rheumatic diseases at the molecular level will foster the development of better diagnostic tests and significantly improve patient care.
@petercgrayson @NIH_NIAMS #RelapsingPolychondritis #RaceforRP
NIH scientists led an international team of researchers toward discovery of a new, adult-onset inflammatory disease abbreviated the VEXAS syndrome. https://t.co/0i7ItcCbAG
We've been taught that relapsing polychondritis ear chondritis is classically limited to the pinna.
Not true - and great collaboration from clinicians/patients to understand this better!
@maferradastrong @petercgrayson @NIH_NIAMS @RP_Organization #ACR20 ABST0423 @RheumNow
Wow! An #ACR20 patient poster from @RP_Organization describes how #RPmaskteam made > 300 one-of-a-kind masks to protect the #RelapsingPolychondritis community from #COVID19. The project “created unity among the international #RP communities,” say the campaign’s founders.
Race for Relapsing Polychondritis (RP) and our motorsports partners are capturing imagination and lending support to advance RP research and the pathway to better care or even a cure.
#RaceforRP #RelapsingPolychondritis #Motorsports #IMSA
Racing for Relapsing Polychondritis Research
â² â¹ â³ Race For RP
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