What Is Relapsing Polychondritis?
Relapsing polychondritis (RP) is a systemic inflammatory disease of unknown etiology that can be fatal. The disease affects multiple organs, particularly cartilaginous structures such as the ears, nose, airways and joints as well as eyes, skin, heart valves and brain.
Learn MoreRP PATIENT SURVEY
Please participate in a relapsing polychondritis (RP) patient-reported symptoms survey, which is being conducted by the National Institute of Arthritis Musculoskeletal and Skin Diseases (NIAMS) of the National Institutes of Health (NIH).
Your participation as an RP patient is critically important as it will further research! Please share this survey link with other RP patients and encourage them to participate.
The Relapsing Polychondritis (RP) Foundation and Race for RP are pleased to support the NIAMS survey, given it will help develop classification criteria and hopefully facilitate timely diagnosis.
The NIAMS survey is for RP patients who are at least 18 years old. Your responses are voluntary and confidential. You will not be compensated for your participation.
Patient Information
Whether you are a newly diagnosed patient, spouse or significant other, parent or other family member of a patient, we are here to help.
We are a patient-founded and patient-driven 501(c)3 non-profit foundation which strives to raise awareness about RP and educate the public, as well as represent patients to the global medical community and support medical research toward a cure.
Learn MoreLatest Foundation News
We strive to provide news related to our progress and efforts as a foundation, important updates and accomplishments of our affiliated and partnership organizations as well as pertinent news we believe impacts patients within the autoimmune disease community and beyond. The sharing or posting of any news does not imply an endorsement of related statistics or confirmation of medical research or information.
View More
Race For RP
Driving Awareness
The Race for RP supports research, awareness programs, and care for those who are affected by relapsing polychondritis (“RP”) and related diseases. Our drivers our passionate about raising awareness for the autoimmune disease community and RP. While our drivers race for RP, our organization is speeding to find a cure. We’re working to facilitate research and studies to help diagnose, prevent and cure Relapsing Polychondritis, and its related diseases. Whether you’re a professional driver, amateur racer, or a weekend warrior passionate about racing, we encourage you to connect with us to discover how you can Race for RP.
Learn More
Race for RP - "Relapsing Polychondritis"Thank you, Michael Watt. ⠀⠀⠀⠀⠀⠀⠀⠀ You and your team are winners! Congratulations on your Ferrari Challenge win at Road Atlanta! ⠀⠀⠀⠀⠀⠀⠀⠀ We greatly appreciate your leadership and wonderful support for the Race for Relapsing Polychondritis. Relapsing Polychondritis Foundation Ferrari of Atlanta
2 days ago
Thank you American Autoimmune Related Diseases Association (AARDA) for hosting this thorough and highly informative webinar addressing COVID-19 and its effects on the autoimmune community.
The slides from the full presentation will be available for review on AARDA’s website later today. We will update the relapsing polychondritis community when they have been posted.
3 days ago
¡Atención pacientes con Policondritis Recividante! Si tienes 18 años o más, por favor completa esta encuesta importante realizada por Los Institutos Nacionales de Salud.
⠀⠀⠀⠀⠀⠀⠀⠀
Enlace de encuesta: www.surveymonkey.com/r/NIHRPSurveyEspanol.
⠀⠀⠀⠀⠀⠀⠀⠀
Gracias.
⠀⠀⠀⠀⠀⠀⠀⠀
⠀⠀⠀⠀⠀⠀⠀⠀
Attention patients with relapsing polychondritis! If you are 18 years or older, please complete this important survey being conducted by the National Institutes of Health.
⠀⠀⠀⠀⠀⠀⠀⠀
Survey Link: www.surveymonkey.com/r/NIHRPSurveyEspanol.
⠀⠀⠀⠀⠀⠀⠀⠀
Thank you.
Policondritis Recidivante Apoyo e Investigacíon POLICONDRITIS Policondrite Amigos
3 days ago
Join American Autoimmune Related Diseases Association (AARDA) for a one-hour webinar featuring panelists with a profound understanding of COVID-19 and its effects on the autoimmune community.
Friday, April 3, 2020 | 2:00- 3:00 p.m. (Eastern)
Upon registration, participants will be invited to submit questions for our panelists.
Click here to Register: zoom.us/webinar/register/WN_F1gJdkVMTkCXht6WiscXUQ
5 days ago
Thank you, #Ferrari. We appreciate the Racing Days at @RoadAtlanta and look forward to being on track again soon.
Special shout out to @MattDusenberry, #FerrariChallenge Series Manager, for making our friends’ wheels go round in the coolest way!
#RaceforRP @FerrariRaces
¡Atención pacientes con Policondritis Recividante! Si tienes 18 años o más, por favor completa esta encuesta importante realizada por Los Institutos Nacionales de Salud.
Enlace de encuesta: https://t.co/gFLTf4GYIz.
¡Gracias!
@Policondritis @NIH_NIAMS #policondritis
¡Atención pacientes con Policondritis Recividante! Si tienes 18 años o más, por favor completa esta encuesta importante realizada por Los Institutos Nacionales de Salud.
⠀⠀⠀
¡Gracias!
@NIH_NIAMS @FriendsAtNIH @Policondritis @PolicondriteAm @RaceForRP #Policondritis #NIH
Join us with @AARDATweets for a one-hour webinar featuring panelists with a profound understanding of COVID-19 and its effects on the #autoimmune community.
Friday, April 3, 2020 | 2-3pm ET.
Register at: https://t.co/s5hIqnCj5A
#AutoimmuneDisease #RelapsingPolychondritis
Attention RP patients!
⠀⠀⠀⠀⠀⠀⠀⠀
The @NIH needs your help to better understand #RelapsingPolychondritis (RP).
Please participate in the patient-reported symptoms survey being conducted by @NIH_NIAMS.
Survey link: https://t.co/temmNowVKi
#RaceforRP #NIH #Research
RP patients: We need your help to better understand #RelapsingPolychondritis.
Please participate in the patient-reported symptoms survey which is being conducted by the @NIH_NIAMS / @NIH.
Survey link: https://t.co/BTROmOyxeI
Thank you for supporting RP research!
We're looking forward to getting back out there! And even though we're not currently racing on the track, we're certainly #DrivingAwareness about relapsing polychondritis (RP) and #AcceleratingResearch.
#RaceforRP #RelapsingPolychondritis #AutoimmuneDisease #BritishGT @SkyUK
Flewitt Racing on Twitter
...
twitter.com
