The Relapsing Polychondritis Foundation offers information about the disease, helpful contacts, links to our support groups, as well as information about upcoming autoimmune disease events and fundraisers. Support Relapsing Polychondritis (RP) research and those affected by this autoimmune disorder by making a donation today.
What Is Relapsing Polychondritis?
Relapsing polychondritis (RP) is a systemic inflammatory disease of unknown etiology that can be fatal. The disease affects multiple organs, particularly cartilaginous structures such as the ears, nose, airways and joints as well as eyes, skin, heart valves and brain.
Learn MorePatient Information
Whether you are a newly diagnosed patient, spouse or significant other, parent or other family member of a patient, we are here to help.
We are a patient-founded and patient-driven 501(c)3 non-profit foundation which strives to raise awareness about RP and educate the public, as well as represent patients to the global medical community and support medical research toward a cure.
Learn MoreLatest Foundation News
We strive to provide news related to our progress and efforts as a foundation, important updates and accomplishments of our affiliate and partnership organizations as well as pertinent news we believe impacts patients within the autoimmune disease community and beyond. The sharing or posting of any news does not imply an endorsement of related statistics or confirmation of medical research or information.
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The Relapsing Polychondritis Foundation Invests in the Next Phase of VEXAS Research
The Relapsing Polychondritis Foundation is partnering with the researchers at NYU Langone Health and the NIH who, in 2020, discovered a new autoimmune disease named VEXAS Syndrome, to build upon…
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Relapsing Polychondritis Patients, Advocates, and Researchers Emphasize Awareness, Partnership, and Collaboration with Exhibits on Rare Disease Day 2022 at the National Institutes of Health
This year’s Rare Disease Day exhibits supported by the Relapsing Polychondritis Foundation included presentations by patients, advocates, and researchers.
Race For RP
Driving Awareness
The Race for RP supports research, awareness programs, and care for those who are affected by relapsing polychondritis (“RP”) and related diseases. Our drivers are passionate about raising awareness for the autoimmune disease community and RP. While our drivers race for RP, our organization is speeding to find a cure. We’re working to facilitate research and studies to help diagnose, prevent and cure Relapsing Polychondritis, and its related diseases. Whether you’re a professional driver, amateur racer, or a weekend warrior passionate about racing, we encourage you to connect with us to discover how you can Race for RP.
Learn MoreRP Foundation on Social Media
Facebook Posts
While we race for RP in the Ferrari Challenge NA and many other motorsports series, we are fueling support for research that can impact all autoimmune diseases. The RP Foundation continues to invest in robust research endeavors with ground-breaking initiatives at the University of Pennsylvania, NYU Langone Health, and the Allegheny Health Network Autoimmunity Institute. For the 1 in 5 people who suffer from an autoimmune disease, research must be accelerated.
Inspired by the patients we serve, and with support from our partners and donors, our race continues, and we don’t plan on slowing down.
Tune-in todCBS Sports Networketwork at 2:00 pm ET, with an encore presentation at 4:30 pm, for the national broadcast oFerrari Races RacesDaytona International Speedwayeedway. During the broadcast, a new Race for RP commercial will air.
Visit RaceforRP.org or scan the QR code in this video and join the r#RaceforRPe#RelapsingPolychondritisd#ferrarichallengel#ferrari488a#autoimmunediseasei#autoimmuneawarenessr#autoimmunei#autoiimmunewarriora#motorsportss#daytonainternationalspeedwayeedway
“In her new memoir, 'The Invisible Kingdom: Reimagining Chronic Illness,' author and journalist Meghan O'Rourke chronicles her odyssey toward a diagnosis after enduring an array of debilitating symptoms for more than a decade.
In her book, she writes about the Allegheny Health Network's Autoimmunity Institute, a place she wished existed during her quest."
Read the full article at the link below to learn about more about Meghan’s journey and the AHN Autoimmunity Institute in Pittsburgh, PA.
#RaceforRP #RelapsingPolychondritis #Autoimmunity #AutoimmuneDisease #AutoimmuneAwareness #AutoimmuneWarrior
www.post-gazette.com/news/health/2022/04/09/ahn-autoimmunity-institute-joseph-ahearn-susan-manzi-...
AHN center is a boon to patients with autoimmune disease
www.post-gazette.com
In her new memoir, “The Invisible Kingdom: Reimagining Chronic Illness,” author and journalist Meghan O’Rourke chronicles her odyssey...Great hospital especaillyDr Susan Manzi very kind and caring provider .
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Thank you, Miriam, for sharing your story with us!
The @RP_Organization's goal is to accelerate RP and autoimmune disease research so we can help patients like Miriam.
Visit http://RaceforRP.org, http://polychondritis.org, or scan the QR code in this video to join the race.
We ready to cheer on the Race for RP drivers and teams in the @MichelinRaceUSA Pilot Challenge at @WeatherTechRcwy. They’ll be raising awareness about relapsing polychondritis and driving support for the @RP_Organization’s research initiatives.
Good luck, drivers and teams!
While we #RaceforRP in the @FerrariRaces, we are fueling support for research that can impact all autoimmune diseases. For the 1 in 5 people battling these debilitating disease, research must be accelerated.
Scan the QR code in this video and join the race!
#AutoimmuneDisease
On board the new No. 153 #RaceforRP Ferrari 488 you’ll see a QR code to support the RP Foundation’s research initiatives.
Here, Jon Morley talks about our our partnership with the researchers at NYU and the NIH who discovered a new autoimmune disease named VEXAS Syndrome.
The @RP_Organization is racing to facilitate awareness, education, and research. Inspired by the patients we serve, and with support from our world-class partners and donors, our race is accelerating.
Visit http://RaceforRP.org or scan the QR code and join the race!
Thank you, @WestphalRacing, for being a champion of Race for RP! We appreciate you sharing your platform to help us advance autoimmune disease research.
Visit http://RaceforRP.org or scan the QR code in this video and help fuel autoimmune research!
#RaceforRP @FerrariRaces
News ‼️ The Relapsing Polychondritis Foundation Invests in the Next Phase of VEXAS Research.
Full article here: http://bit.ly/RPF_VEXAS
#RaceforRP #RelapsingPolychondritis #NYU #NIH #VEXAS #Autoimmune #AutoimmuneDisease #Research @RaceForRP
