The Relapsing Polychondritis Foundation offers information about the disease, helpful contacts, links to our support groups, as well as information about upcoming autoimmune disease events and fundraisers. Support Relapsing Polychondritis (RP) research and those affected by this autoimmune disorder by making a donation today.
What Is Relapsing Polychondritis?
Relapsing polychondritis (RP) is a systemic inflammatory disease of unknown etiology that can be fatal. The disease affects multiple organs, particularly cartilaginous structures such as the ears, nose, airways and joints as well as eyes, skin, heart valves and brain.
Learn MorePatient Information
Whether you are a newly diagnosed patient, spouse or significant other, parent or other family member of a patient, we are here to help.
We are a patient-founded and patient-driven 501(c)3 non-profit foundation which strives to raise awareness about RP and educate the public, as well as represent patients to the global medical community and support medical research toward a cure.
Learn MoreLatest Foundation News
We strive to provide news related to our progress and efforts as a foundation, important updates and accomplishments of our affiliate and partnership organizations as well as pertinent news we believe impacts patients within the autoimmune disease community and beyond. The sharing or posting of any news does not imply an endorsement of related statistics or confirmation of medical research or information.
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FULL THROTTLE, Powered by Race for RP, Premieres Hosted by Greg Creamer Covering IMSA and Other Motorsports Alongside Segments Featuring the Relapsing Polychondritis Foundation and Race for RP
FULL THROTTLE provides exclusive interviews and insights regarding RP, related autoimmune diseases, and IMSA Racing to engage and energize motorsports fans.
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The Relapsing Polychondritis Foundation Invests in Potentially Groundbreaking Collaborative Research
The Relapsing Polychondritis Foundation is supporting a study to advance autoimmune disease research and bring science closer to the discovery of a biomarker for RP.
Race For RP
Driving Awareness
The Race for RP supports research, awareness programs, and care for those who are affected by relapsing polychondritis (“RP”) and related diseases. Our drivers are passionate about raising awareness for the autoimmune disease community and RP. While our drivers race for RP, our organization is speeding to find a cure. We’re working to facilitate research and studies to help diagnose, prevent and cure Relapsing Polychondritis, and its related diseases. Whether you’re a professional driver, amateur racer, or a weekend warrior passionate about racing, we encourage you to connect with us to discover how you can Race for RP.
Learn MoreRP Foundation on Social Media
Facebook Posts
Thanks to our generous donors and Race for RP - "Relapsing Polychondritis" ambassadors, we’re able to fund groundbreaking RP research. Where there is research there is hope. Not just for patients with RP but all patients with autoimmune diseases.
“Only good things are going to happen from this [RP Foundation’s research initiatives], and it gives us hope.” – Dan Smith, patient with RP
youtu.be/QqzcXkWX4vA
VEXAS is an autoimmune disease recently discovered by researchers at NYU Langone Health and the National Institutes of Health (NIH) . In March, we invested in the next phase of the VEXAS research project to continue the search for additional genetic mutations in patients with autoimmune diseases.
We're excited to share researchers have discovered common genetic variants in VEXAS patients! This discovery brings science one step closer to the discovery of a biomarker for RP.
You can read the study here: www.medrxiv.org/content/10.1101/2022.07.27.22277962v1.full.pdf+html
Race for RP - "Relapsing Polychondritis"
Did I read that right?? 61% female patients?
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Have you heard? We’ve launched a new RP awareness campaign with Race for RP - "Relapsing Polychondritis"! It’s called Full Throttle and provides exclusive interviews and insights regarding RP, related autoimmune diseases, IMSA_Racing, and our collaborative research projects that are ushering in a new era of hope for patients with RP.
Watch the first episode here: bit.ly/3Aw9YCj
And subscribe to the Race for RP YouTube channel so you never miss an episode!
Check out Greg Creamer’s fantastic coverage of Neilio and Race for RP - "Relapsing Polychondritis" in the Ferrari Challenge NA series which is broadcast nationally on CBS Sports Network . Thank you, Greg, for supporting the RP Foundation and our mission to facilitate awareness, education, and research of relapsing polychondritis and autoimmune diseases.
While we drive awareness and education with our motorsports partners, we’re investing in ground-breaking research initiatives. Inspired by the patients we serve, and with the generous support of our donors, the RP Foundation is accelerating research and the path to a cure.
The Ferrari Challenge NA series continues in just two weeks from Indianapolis Motor Speedway. Stay tuned for details.
Visit Polychondritis.org or scan the QR code in this video to join the race and help fuel RP and autoimmune disease research.
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#RaceforRP #RelapsingPolychondritis #AutoimmuneDisease #AutoimmuneResearch #FerrariChallenge #Broadcaster #Broadcasters #ferrari488 #motorsports #forzaferrari #racecardriver #cbssports
Thanks to our donors and @RaceForRP ambassadors, we're able to sponsor groundbreaking research that helps all patients with autoimmune diseases.
“Only good things are going to happen from this, and it gives us hope.” – Dan Smith, patient with RP
https://youtu.be/QqzcXkWX4vA
Check out the latest Episode of Full Throttle, Powered by Race for RP. @GregCreamer13 speaks with Dr. Rashmi @kanagalshamanna, of @MDAndersonNews, about powerful new research being conducted in partnership with @NYUGrossman and the @RP_Organization.
Full Throttle: Episode 5
Share your videos with friends, family, and the world
www.vidrise.com
We are ready for Nashville!!
#RaceforRP #RelapsingPolychondritis #GoTransAm https://twitter.com/GoTransAm/status/1555379256565415936
The anticipation is killing me! 😆 Trans Am is on track TOMORROW @BigMachine @MusicCityGP! I can't wait to see these cars race down the streets of Nashville. Stream the @bigmchnvodka @SpikedCoolers Challenge, presented by @RaceForRP on 8/6 at 1:10pm ET on TA's YouTube. 🎥: @Motul
We're excited to share researchers @nyulangone and @NIH have discovered common genetic variants in VEXAS patients! This discovery brings science one step closer to the discovery of a biomarker for RP. Read the study here: https://bit.ly/3bBbAjT
@RaceForRP #research #autoimune
The green flag has dropped on a new RP-related research initiative!
Visit http://bit.ly/MDANYU_RPResearch to learn more about the study lead by Dr. Rashmi @kanagalshamanna of @MDAndersonNews and Dr. David B. Beck of @NYUGrossman.
#RaceforRP #RelapsingPolychondritis #FerrariChallenge
We’re honored to have Dr. Rashmi Kanagal-Shamanna of @MDAndersonNews and Dr. David Beck, of @NYUGrossman School of Medicine join us at @IMS for the @FerrariRaces NA series.
The green flag has dropped on RP and autoimmune disease research and our race is accelerating!
#RaceforRP
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Sign up here: https://bit.ly/3O0M4ly
#relapsingpolychondritis #newsletter
