The Relapsing Polychondritis Foundation offers information about the disease, helpful contacts, links to our support groups, as well as information about upcoming autoimmune disease events and fundraisers. Support Relapsing Polychondritis (RP) research and those affected by this autoimmune disorder by making a donation today.
What Is Relapsing Polychondritis?
Relapsing polychondritis (RP) is a systemic inflammatory disease of unknown etiology that can be fatal. The disease affects multiple organs, particularly cartilaginous structures such as the ears, nose, airways and joints as well as eyes, skin, heart valves and brain.
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Patient Information
Whether you are a newly diagnosed patient, spouse or significant other, parent or other family member of a patient, we are here to help.
We are a patient-founded and patient-driven 501(c)3 non-profit foundation which strives to raise awareness about RP and educate the public, as well as represent patients to the global medical community and support medical research toward a cure.
Learn MoreLatest Foundation News
We strive to provide news related to our progress and efforts as a foundation, important updates and accomplishments of our affiliated and partnership organizations as well as pertinent news we believe impacts patients within the autoimmune disease community and beyond. The sharing or posting of any news does not imply an endorsement of related statistics or confirmation of medical research or information.
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Relapsing Polychondritis Patients and Advocates Emphasize the Benefits of Collaboration in Prestigious Patient Perspective Poster Program
This year’s American College of Rheumatology annual meeting featured five relapsing polychondritis (RP) patient poster submissions that were selected for presentation.
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The RP Foundation Featured with Scuderia Corsa in the Ferrari Challenge at WeatherTech Raceway Laguna Seca
Ferrari Challenge drivers bring excitement and awareness to the track
Race For RP
Driving Awareness
The Race for RP supports research, awareness programs, and care for those who are affected by relapsing polychondritis (“RP”) and related diseases. Our drivers our passionate about raising awareness for the autoimmune disease community and RP. While our drivers race for RP, our organization is speeding to find a cure. We’re working to facilitate research and studies to help diagnose, prevent and cure Relapsing Polychondritis, and its related diseases. Whether you’re a professional driver, amateur racer, or a weekend warrior passionate about racing, we encourage you to connect with us to discover how you can Race for RP.
Learn MoreRP Foundation on Social Media
March is Autoimmune Disease Awareness Month and we’re grateful to draw attention to the Allegheny Health Network Autoimmunity Institute in Pittsburgh, PA, a break-through center advancing the diagnosis, treatment, prevention and cure of autoimmune diseases through collaborative multi-specialty care and cutting-edge research.
Learn more at their link below.
#RacefoRP #RelapsingPolychondritis #AutoimmuneDisease
#autoimmune #autoimmunewarrior #ibd #rheumatoidarthritis #ankylosingspondylitis #t1d #type1diabetes #crohnsdisease #colitis #gravesdisease #celiac #celiacdisease #scleroderma #psoriasis #multiplesclerosis #autoimmunity #autoimmuneprotocol #autoimmunepaleo #lupus #lupuswarrior #lupusawareness #hashimotos #myastheniagravis #vasculitis #sjogrenssyndrome #sarcoidosis #vitiligoOur Autoimmunity Institute patients have come from 34 states to receive precise diagnoses and expert treatment for over 100 autoimmune diseases. Learn more: https://bit.ly/3bPLF47
2 days ago
American Autoimmune Related Diseases Association (AARDA)March is Autoimmune Disease Awareness Month! AARDA is committed to raising awareness about autoimmune disease and creating resources and education for our community. Stay tuned throughout the month for more updates, stories, and information! www.aarda.org
2 days ago
Thank you National Center for Advancing Translational Sciences and The NIH Clinical Center for hosting this amazing #RareDiseaseDay event at the National Institutes of Health (NIH).
We were honored to represent relapsing polychondritis with the rare disease community, the researchers, the Race for RP - "Relapsing Polychondritis" awareness campaign and the many collaborative efforts underway to facilitate awareness, education, and research to improve the quality of life for patients with RP.
#RDD #RDDNIH #RelapsingPolychondritis #RaceforRP #RareDiseaseDayThank you to all the speakers and attendees of this year’s virtual #RareDiseaseDay at the National Institutes of Health (NIH)! We are inspired by the collaborative efforts and passion that so many people shared to help advance #RareDiseases research to benefit patients. #RDDNIH
6 days ago
Coming up is the final session of #RDDNIH which will begin at 4:10 pm. EST.
Hear panelists discuss the role of advocacy to advance Rare Diseases research. National Center for Advancing Translational Sciences Race for RP - "Relapsing Polychondritis"
videocast.nih.gov/watch=41259
#RDDNIH #RelapsingPolychondritis #RaceforRP #RareDiseaseDay2021
NIH VideoCast - Rare Disease Day at NIH 2021
videocast.nih.gov
CIT can broadcast your seminar, conference or meeting live to a world-wide audience over the Internet as a real-time streaming video. The event can be recorded and made available for viewers to watch at their convenience as an on-demand video or a downloadable file. CIT can also broadcast NIH-only o...6 days ago
We’re excited to have Race for RP - "Relapsing Polychondritis" and Nancy Linn represented during Rare Disease Day at NIH. Race for RP facilitates research, increases awareness, and improves care for those who are affected by relapsing polychondritis.
Visit the link below to view additional information and to learn more about research initiatives, including a unique partnership between the University of Pennsylvania and the NIH-sponsored Vasculitis Clinical Research Consortium.
event.crowdcompass.com/rddnih2021/organization/QyVPsx6KUb
#RDD2021 #RDD #RDDNIH #RelapsingPolychondritis #RaceforRP #RareDiseaseDay2021
event.crowdcompass.com
Sponsored by the National Center for Advancing Translational Sciences and Clinical Center at the National Institutes of Health (NIH), Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations underway to address scientific challenges...6 days ago
Battles are shaping up here with 10 minutes remaining!
⏱️ https://t.co/rbsckxyMIs
🖥️ https://t.co/cIkGZYKTMg
#GTSonoma | #GT4America
March is Autoimmune Disease Awareness Month! AARDA is committed to raising awareness about autoimmune disease and creating resources and education for our community. Stay tuned throughout the month for more updates, stories, and information! https://t.co/yhLCVPmoOK
Thank you to all the speakers and attendees of this year’s virtual #RareDiseaseDay at @NIH! We are inspired by the collaborative efforts and passion that so many people shared to help advance #RareDiseases research to benefit patients. #RDDNIH
We're looking forward to this session.
#RDDNIH #RelapsingPolychondritis #RaceforRP #RareDiseaseDay2021
The third and final session of #RDDNIH will begin at 4:10 p.m. EST. Hear panelists discuss the role of advocacy to advance #RareDiseases research. https://t.co/9FJ9W03lRw
We have heard several #RareDiseases stories and research updates at today's #RDDNIH virtual event! Up next is Nobel Laureate Jennifer A. Doudna, Ph.D., who will be discussing #CRISPR genome editing. View the VideoCast to hear from Dr. Doudna: https://t.co/i4xtlCTnVn
We’re excited to have @RaceforRP and Nancy Linn represented during RDD at @NIH. Race for RP facilitates research, increases awareness, and improves care for those who are affected by relapsing polychondritis.
Visit the link below: https://t.co/6PqUpKtOnh
#RDDNIH #RaceforRP
Outstanding to see the RP mask team with Isabel Bautista showcased during today’s Rare Disease Day at NIH virtual conference.
Visit the virtual exhibit here: https://t.co/ZsRBFNgygT
#RDD #RDDNIH #RelapsingPolychondritis #RaceforRP #RPmaskteam #RareDiseaseDay2021 @ncats_nih_gov
