What Is Relapsing Polychondritis?
Relapsing polychondritis (RP) is a systemic inflammatory disease of unknown etiology that can be fatal. The disease affects multiple organs, particularly cartilaginous structures such as the ears, nose, airways and joints as well as eyes, skin, heart valves and brain.
Learn MorePatient Information
Whether you are a newly diagnosed patient, spouse or significant other, parent or other family member of a patient, we are here to help.
We are a patient-founded and patient-driven 501(c)3 non-profit foundation which strives to raise awareness about RP and educate the public, as well as represent patients to the global medical community and support medical research toward a cure.
Learn MoreLatest Foundation News
We strive to provide news related to our progress and efforts as a foundation, important updates and accomplishments of our affiliated and partnership organizations as well as pertinent news we believe impacts patients within the autoimmune disease community and beyond. The sharing or posting of any news does not imply an endorsement of related statistics or confirmation of medical research or information.
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Today is #GivingTuesday, a day of giving and a global movement that inspires hundreds of millions of people to give, collaborate, and celebrate generosity.
Together with our partner at Race for RP - "Relapsing Polychondritis", we encourage you to support the Relapsing Polychondritis Foundation on Giving Tuesday to help us in our mission to raise awareness and advance research for RP.
Join us as we drive RP into history.
#GivingTuesday #RelapsingPolychondritis #RaceforRP #Autoimmune #AutoimmuneDisease
give.polychondritis.org/give/257698/#!/donation/checkout
give.polychondritis.org
I’d like to cover the fees associated with my donation so more of my donation goes directly to Relapsing Polychondritis Awareness and Support Foundation Inc..We were thrilled to have Nancy & Neil represent Race for RP - "Relapsing Polychondritis" at the Abu Dhabi Grand Prix, which took place over 55 laps on the 5.554-kilometer Yas Marina Circuit. It was a spectacular day which started with Nancy taking an incredible Hot Lap around the circuit with Joe Osborne piloting an amazing McLaren 720S. #F1 #RaceforRP #RelapsingPolychondritis #AcceleratingResearch #DrivingAwareness Joe Osborne Racing
Congratulations, Mia Flewitt! You are now the two-time FIA Pure McLaren GT Series Champion! You clinched the FIA Pure McLaren GT Series Championship in Bahrain after three hard-fought exciting races at the Bahrain International Circuit! We applaud the entire Flewitt Racing team for another excellent season and salute you all for your well-deserved continued success. Looking forward to watching you race as part of a three-driver team at the Gulf 12 Hours at Yas Marina Circuit in Abu Dhabi on Saturday, December 14, 2019. Thank you for driving awareness and accelerating research for relapsing polychondritis (“RP”), an autoimmune disease that attacks the patient’s cartilage. #McLaren #McLaren570S #PureMcLaren #RaceforRP
After Black Friday and Cyber Monday there is Giving Tuesday, December 3, 2019, a global day of giving and a movement that inspires hundreds of millions of people to give, collaborate, and celebrate generosity.
This year, together with our partner at Race for RP, we encourage you to support the Relapsing Polychondritis Foundation to help us in our mission to raise awareness and advance research for RP.
Join us as we drive RP into history.
#GivingTuesday #RelapsingPolychondritis #RaceforRP #autoimmune #autoimmunedisease
give.polychondritis.org/give/257698/#!/donation/checkout
give.polychondritis.org
I’d like to cover the fees associated with my donation so more of my donation goes directly to Relapsing Polychondritis Awareness and Support Foundation Inc..An update from our friends at The Canadian Society for Relapsing Polychondritis who sent representatives to the Canadian Organization for Rare Disorders conference in Toronto to advocate for Personalized Healthcare!
The Canadian Organization for Rare Disorders (CORD) is a Canadian registered charity that is a network of organizations representing people affected by rare diseases. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders.
Thank you CSRP for representing the relapsing polychondritis patient community!
#CANforRP #RelapsingPolychondritis #RaceforRPCSRP representatives attend the CORD conference on Personalized Healthcare; Access to Cell and Gene therapies conference. Could RP patients take advantage of these innovative therapies?
#CanforRP
#Cordaccessinnovation19 #canada4rare
Thank you Canadian Society for Relapsing Polychondritis for your determination and efforts to help all RP patients in ways like this❣👍 #CanforRP #RelapsingPolychondritis
They have one here right? USA
Today is #GivingTuesday - a global movement of giving and generosity. Together with our partner at @RaceforRP, we encourage you to support the #RelapsingPolychondritis Foundation to help drive awareness and advance research for RP. https://t.co/OtQH9Ooj5m
December 3, 2019 is #GivingTuesday - a global movement of giving. Together with our partner at @RaceforRP, we encourage you to support the #RelapsingPolychondritis Foundation to help drive awareness and advance research for RP. Click here to give, https://t.co/OtQH9Ooj5m
We're looking forward to #DrivingAwareness and #AcceleratingResearch for #RelapsingPolychondritis in the #Rolex24 at @DISupdates. #RaceforRP #AutoimmuneDisease @KohR_MS @airbnb @RPASF_Official
IMSA on Twitter
”59 days until #Rolex24!”
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Thank you @KohR_MS, @KyleMarcelli and @NateStacyRacing for your support of the #RelapsingPolychondritis Foundation and #RaceforRP.
We're Driving Awareness!
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#AutoimmuneDisease #ShareNMU #Autoimmunity #AutoimmuneDiseases #Autoimmune #IMPC @AHNtoday @NorthernMichU
Vice-Chair of the Relapsing Polychondritis Foundation, Mike Linn, sat down to discuss step therapy at the @LetMyDrDecide exhibit during the 2019 @ACRheum Annual Meeting. #RelapsingPolychondritis #RaceforRP #AutoimmuneDisease #Autoimmune @ACR19 #escapethesystem @AARDATweets
Let My Doctors Decide on Twitter
””They are frustrated because it breaks the bond of trust with their doctor.” â Michael Linn, board member of @AARDATweets and ...
twitter.com
“They are frustrated because it breaks the bond of trust with their doctor.” – Michael Linn, board member of @AARDATweets and @RPASF_Official, on how step therapy has impacted his patients. #escapethesystem #ACR19
Deb Patrick and Dave Bammert of AARDA along with other staff members are at the ACR representing all #AutoimmuneWarriors! This is one of the largest conferences we attend, to connect with other #AutoimmuneDisease experts & patient leaders in research, awareness, and advocacy.
A shout out to The Canadian Society for Relapsing Polychondritis from Dr. Marcela Ferrada, here at the 2019 @ACRheum Annual Meeting. @CANforRP
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Thank you, CSRP! Learn more at https://t.co/BWvEYWJwFx
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#CANforRP #ACR19 #RelapsingPolychondritis
