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Let’s Raise Awareness for RP

  • Bryana Allen
  • July 3, 2024

Raising Awareness for RP

Eblast Graphics

February 29 is Rare Disease Day, the rarest day of the year! Help us raise awareness for relapsing polychondritis on Rare Disease Day by sharing your story on social media.

Here’s how:

  1. Post a photo of you on Facebook, Instagram, LinkedIn, or X. In the caption, share a little bit about your RP journey.
  2. Tag the Relapsing Polychondritis Foundation.
  3. Use the hashtag #ShowYourStripes.
  4. Share your story!

Then, we’ll share your story on our channels with our followers.

We want to see and share stories from patients, family, friends, physicians, researchers, and supporters. Together, we can show the impact of RP and raise awareness this Rare Disease Day.

POST ON FACEBOOK

BIG News

Eblast Graphics (1)

That’s right! Denise Stefanie’s powerful anthem “I Will Fight,” featured in the film The Race of Our Lives, was honored with the Award of Excellence for Original Song by the IMPACT DOCS Awards on February 6, 2024, in La Jolla, California. The piece was written, composed, and performed by Denise, a supporter and close collaborator of the RP Foundation and Race for RP, and features additional vocals from longtime Motown artist Philip Ingram and veteran vocalist Lynn Davis. The track is Stefanie’s second musical piece dedicated to raising awareness and research funding for RP, accompanying “All In” which debuted on July 2, 2021.

Director Roy Medawar’s documentary feature also earned an Award of Merit – Special Mention. This latest success marks the film’s sixth film festival award since its release in October 2023.

The IMPACT DOC Awards is an international awards competition for documentary films attracting both powerhouse industry veterans, including Oscar winning filmmakers and performers, as well as fresh industry talent.

This award is a major achievement for Denise and a huge step forward in raising awareness for relapsing polychondritis and related autoimmune disease.

WATCH MUSIC VIDEO

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All content of this web site, such as text, graphics, images, or any other material contained in this website are for informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We do not recommend the self-management of health problems. We cannot and do not give you medical advice. If you think you may have a medical emergency, call your doctor or 911 immediately. The Relapsing Polychondritis Foundation, Inc. is a nonprofit 501(c)3 corporation. Donations are tax deductible as allowed by law.