Purpose Biobank has Launched!
We’re excited to announce that the Patients’ Universal Polychondritis Open Specimen Endeavor (PURPOSE) Biobank, developed in partnership with the Allegheny Health Network (AHN) Autoimmunity Institute has launched a nationwide!
Led by AHN, PURPOSE is an unprecedented effort to create a biospecimen repository, including clinical data and blood samples from patients across the country who have been diagnosed with relapsing polychondritis (RP). Once enough specimens are collected, leading researchers at the AHN Autoimmunity Institute and investigators nationwide – and eventually around the world – will have access to the information as part of the collective effort to advance diagnostic accuracy, monitoring and treatment of relapsing polychondritis and other autoimmune diseases.
Read Press Release
Thanks for an Amazing Indy 500 Race Weekend!
A shout-out to long time Relapsing Polychondritis Foundation partners, Kevin Lee and the Lee family (Kevin, Stacey, Jackson and Savannah), James Hinchcliff, and Donald Rohr, for hosting an epic VIP race weekend experience in Indy! This incredible event raised funds to fuel RP-related autoimmune disease research while providing attendees with unforgettable experiences at the 108th running of the Indianapolis 500.
Thank you, Kevin and James Hinchcliff, and Donald Rohr, for your valued partnership and support!
Highlighting James Hinchcliff’s Exclusive Carb Night Happy Hour
James Hinchcliff and friends hosted an exciting preamble to the Indy race…Carb Night at the Root and Bone in Broad Ripple, Indiana! This distinctive event featured “surprise” special guests, unique auction items and complementary food and drinks, including top shelf bourbon and wine tastings, and select fare from Root and Bone’s award-winning menu!
This exciting event raised over $40,000 for The Relapsing Polychondritis Foundation and The Stop and Go Foundation. Proceeds from the fundraiser will help us advance RP and related autoimmune disease research.
Thank you to everyone who participated in this incredible event!
