Foundation News​

The Relapsing Polychondritis Foundation extends its heartfelt appreciation to Neil “Neilio” Langberg for his pivotal role as a Race for RP ambassador in the Ferrari Challenge series. As a renowned driver and brand ambassador, Neil’s unwavering dedication to raising awareness for Relapsing Polychondritis (RP) has had a profound impact on patients, caregivers, and researchers across the globe. Read more to see a personal message from “Neilio”.

As the holiday season draws to a close, we reflect on the immense progress and collective achievements made throughout 2024. The RP Foundation extends our heartfelt appreciation to our incredible donors, motorsports partners, clinical researchers, and patients with RP. Your steadfast support, compassion, and collaboration have been vital in driving forward our mission to support RP-focused initiatives in the three key pillars of awareness, education, and research.

SPEEDWAY, Indiana- November 8, 2024- The Relapsing Polychondritis Foundation announced today the successful conclusion of the 2024 Warrior Walk for Relapsing Polychondritis. The annual 10-day fundraising event raised $38,658 to benefit disease awareness and research.

PITTSBURGH – The Allegheny Health Network (AHN) Autoimmunity Institute, in partnership with the Relapsing Polychondritis Foundation, today announced that it has launched a nationwide, first-of-its-kind study, known as ‘Patients’ Universal Relapsing Polychondritis Open Specimen Endeavor’ (PURPOSE).

Talented singer-songwriter Denise Stefanie’s powerful anthem “I Will Fight,” featured in the film The Race of Our Lives, was honored with the Award of Excellence for Original Song by the IMPACT DOCS Awards on February 6, 2024, in La Jolla, California.

Recently published research from Dr. Rashmi Kanagal-Shamanna highlights the link between autoimmune disease (VEXAS), cancer and somatic gene mutations. The findings have several important implications.