Speedway, IN- November 20, 2025 – The Relapsing Polychondritis Foundation (RP Foundation) announces a transition in its Board leadership. After serving with distinction as Chair, Nancy Linn will assume the honorary title of Chair Emerita.
The Foundation extends its deepest gratitude to Nancy for her visionary leadership, tireless advocacy, and unwavering commitment to advancing research and awareness for relapsing polychondritis. Her dedication has strengthened the RP community and laid a powerful foundation for future progress.
Simultaneously, Neil Langberg has been elected to the position of Chair of the Board, embarking on a new two-year term.
Nancy Linn: A Legacy of Advocacy and Vision
Nancy Linn, a research advocate and philanthropist, was diagnosed with relapsing polychondritis (RP) in 2011. Motivated by her personal journey with a rare autoimmune disease, Nancy produced the documentary RP: The Race of Our Lives, to raise awareness and accelerate research on RP and related autoimmune diseases. Under her leadership as Chair, the RP Foundation grew in visibility, built partnerships with research institutions, and amplified the voices of patients and families navigating RP. As Chair Emerita, Nancy will continue to serve as an advisor and ambassador, lending her voice, experience and passion to the foundation’s mission. To learn more about Nancy Linn’s journey to find purpose after her relapsing polychondritis diagnosis, watch “The Ride of My Life” by clicking here. To learn how a singular purpose grew into a movement to spread awareness, view the director’s cut of “The Race of Our Lives”, click here.
Neil Langberg: Driving Awareness into the Next Era
Neil Langberg brings a unique blend of decades-long professional experience and advocacy leadership to his new role. After a 40-year career as an analyst and portfolio counselor in the investment management industry, Neil retired in 2018. Since then, he has been a major contributor to the RP Foundation’s signature awareness campaign, Race for RP, leveraging motorsports platforms and global outreach to shine a spotlight on RP and autoimmunity research. As he assumes the position of Chair, Neil will guide the foundation’s strategic direction for the next two years with a focus on broadening research partnerships, amplifying patient-centered education, and accelerating efforts towards treatments and ultimately a cure.
About the RP Foundation
The Relapsing Polychondritis Foundation is a patient-driven 501(c)(3) nonprofit organization dedicated to increasing awareness, improving diagnosis, expanding education, and advancing research to improve the quality of life for people living with relapsing polychondritis (RP). Since its founding in 2018, the Foundation has raised more than $1 million and supported over 30 research projects through collaboration with leading researchers and institutions. Where there’s research, there’s hope.
For more information or to donate, visit www.polychondritis.org.
