Foundation News​

As we reflect on this past year, we want to thank you for standing with the RP Foundation and helping advance our mission: to fuel scientific discoveries and collaborations that will bring us closer to a cure for relapsing polychondritis. Your generosity has accelerated research, expanded patient access to specialty care, and strengthened the global network of experts working to improve the lives of people living with Relapsing Polychondritis (RP).

The Relapsing Polychondritis Foundation (RP Foundation) announces a transition in its Board leadership. After serving with distinction as Chair, Nancy Linn will assume the honorary title of Chair Emerita. The Foundation extends its deepest gratitude to Nancy for her visionary leadership, tireless advocacy, and unwavering commitment to advancing research and awareness for relapsing polychondritis. Simultaneously, Neil Langberg has been elected to the position of Chair of the Board, embarking on a new two-year term.

The Relapsing Polychondritis Foundation proudly announces the record-breaking success of the 2025 Warrior Walk for Relapsing Polychondritis — a nationwide virtual campaign dedicated to raising funds and awareness for this rare autoimmune disease. In just two weeks, the Foundation surpassed its fundraising goal, generating over $25,000, supported by an unprecedented number of new donors and returning participants.

The RP Foundation is pleased to share an exciting new initiative that we’re continuing to invest in – the PURPOSE Biobank and Data Repository, that we believe will advance RP and related autoimmune disease research. PURPOSE Biobank is a unique direct-to-patient initiative to collect blood specimens and medical information from individuals with RP and related autoimmune diseases with the goal of accelerating the discovery of improved diagnostic tests, therapies and ultimately a cure.

McLaren Trophy America is proud to welcome Race for RP as an official championship partner as the series expands into the United States for the 2025 season. The partnership, which aims to raise awareness and funds for Relapsing Polychondritis, a rare and degenerative autoimmune disease, ensures that all competing cars will feature Race for RP branding starting at the season opener in Sonoma, California.  In addition, the organization will enjoy additional presence in the paddock and promotional activations—including a charity auction to support vital research.

Now available: the exclusive Director’s Cut of The Race Of Our Lives, featuring nearly 15 minutes of additional content. Watch how a singular purpose grew into a movement to drive awareness and fuel groundbreaking research for a rare autoimmune disease called Relapsing Polychondritis (RP).