RP Foundation at Rare Disease Day 2023

Bryana Allen
March 2, 2023

The National Institutes of Health (NIH) Clinical Center held its annual event, Rare Disease Day at the NIH, on February 28, 2023. The goal of this event is to raise rare disease awareness, spotlight those impacted by rare diseases, and NIH collaborations that advance research for new treatments.

This year’s Rare Disease Day exhibits supported by the Relapsing Polychondritis Foundation included a presentation by Mike Linn, Director of the RP Foundation, and Dr. Marcela Ferrada, researcher at the NIH.

Their presentation, Where There is Research, There is Hope, highlighted the collaborative research initiatives the RP Foundation supports and how they bring patients hope. These potentially groundbreaking initiatives are working to identify the genetic cause of RP with the hopes of discovering an actionable biomarker so we can find better treatments and maybe, one day, a cure.

Watch their presentation below.

Check out some of the highlight videos below.

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Relapsing Polychondritis Foundation
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