Creating a centralized state-of-the-art collection of clinical and research data so researchers can vastly improve our understanding of Relapsing Polychondritis and related diseases.
When dealing with a big problem, it helps to think about the big picture. There are more than 100 autoimmune diseases that share genetic and pathogenic mechanisms. That means answers for one condition can help solve problems across the entire spectrum of autoimmune diseases.
PURPOSE (Patients’ Universal Relapsing Polychondritis Open Specimen Endeavor) is an unprecedented national initiative to collect data for cutting-edge research into RP and related diseases.
The Relapsing Polychondritis (RP) Foundation is proud to partner with the Autoimmunity Institute on this unprecedented effort to create a centralized state-of-the-art collection of clinical and research data (Biobank) from patients with RP. No single institution can collect enough data, but together we can support breakthrough research that makes a meaningful difference.
“We don’t have all the answers, but we have purpose—and having purpose changes everything.“
The Biobank we’re building will help us identify causes and treatments for Relapsing Polychondritis and related autoimmune diseases. We’ve made it easy for patients to participate and provide specimens through a simple at-home submission process. We’re confident we’ll get a wide range of samples that will help patients dealing with a range of conditions.
Until recently, there were few options and even fewer resources for patients living with RP. We’re working every day to unlock the mysteries of RP and deliver hope to patients and their families.