Story of Hope
Naomi Amudala, CRNP
“The research that we’re doing is helping us learn more about this disease (RP) and then develop effective therapies.”
The Relapsing Polychondritis (RP) Foundation is a champion for patients, a source of support for family members, and a driving force for research and awareness focusing on this debilitating autoimmune disease. We discover sources of hope to match your courage.
Relapsing Polychondritis (RP) is a severe chronic autoimmune disease in which cartilage throughout the body becomes inflamed and breaks down over time. This potentially fatal disease can affect any part of the body where cartilage is present, including the ears, nose, airways, joints, eyes, skin, heart valves, and brain.
We strive to be a catalyst for research on treatments and cures for RP. Until recently, there were few options and even fewer resources for patients living with RP.
Researchers are learning more about autoimmune diseases every day. That’s why we focus on being collaborative and nimble in our research support. Answers can come from many places, and we want to do everything we can to help find them.
Creating a centralized state-of-the-art collection of clinical and research data so researchers can vastly improve our understanding of Relapsing Polychondritis and related diseases.
The RP Foundation facilitates awareness, education, and research to improve the quality of life for patients with Relapsing Polychondritis (RP) and advance a cure for this disease. Our Board of Directors leverages diverse experiences in the government, healthcare, nonprofit, and corporate worlds to help connect patients and their families to the resources and hope they need.
Race for RP is a partnership with race car drivers, teams, owners, sponsors, and enthusiasts to drive awareness and accelerate research for relapsing polychondritis and other autoimmune diseases. Whether you’re a professional driver, amateur racer, or a weekend warrior passionate about racing, connect with us to learn how you can Race for RP.
Through the synergy of our partnerships, we’re reimagining RP-centered research and patient care. We’re always looking for innovative partners and targeted collaborative opportunities that drive real results for patients and families living with RP and other autoimmune diseases.
“A New Documentary Shines Light on a Rare Autoimmune Disease and a Local Resident’s Effort to Fight It.” Read Article