A unique partnership to improve care for patients with Relapsing Polychondritis and invest in powerful research initiatives to advance a cure.
The Penn RP Fund works to improve care for patients with RP by funding a partnership between the internationally-recognized University of Pennsylvania RP Program and the Vasculitis Clinical Research Consortium sponsored by the National Institutes of Health. The program helps researchers pursue important projects to examine the causes of and potential treatments for RP, and it helps patients receive outstanding personalized clinical care.
The RP Foundation is committed to supporting powerful research initiatives that lead to better treatments today and a cure tomorrow. With support from Race for RP, Nancy Linn, Neil Langberg, and the RP Foundation established the Penn RP Fund with an initial gift in February 2020 and continue to support the program’s work through our philanthropic partners.
“It is especially gratifying to be working with the internationally-recognized center of excellence at the University of Pennsylvania and the world-renowned leaders in the conduct of clinical and translational research.”
Early in 2021, the Penn RP Program began enrolling patients in the Vasculitis Clinical Research Consortium Relapsing Polychondritis Longitudinal Study. The study is collecting detailed clinical data, biospecimens, and other information for a wide range of projects that will help us grow our understanding of clinical outcomes, genetic links, and tests to better treat patients. Together with our partners, we’re expanding our ability to support RP patients and extending the reach of our resources beyond RP to related autoimmune diseases.
Until recently, there were few options and even fewer resources for patients living with RP. We’re working every day to unlock the mysteries of RP and deliver hope to patients and their families.