The Canadian Society for Relapsing Polychondritis (CSRP) is an incredible partner in our mission to overcome RP. This organization works closely with Race for RP and the RP Foundation to increase awareness and support patients.
Gonnie Imeson, Director and Chair of CSRP, shared her personal experience having relapsing polychondritis:
“It’s difficult when you’re told you have something and you have no idea what it is. The first thing you do is you go Google it and you realize you don’t really have a support system and there’s no doctors who know what you’re talking about. Even the doctors are Googling what your disease is. I mean, it’s scary. It’s terrifying.”
We are pleased and honored to stand with the CSRP and the many other patients, advocates, and researchers who are helping to fight RP.
Gonnie Imeson graciously participated in the “An Advocates’ View on Driving Relapsing Polychondritis Awareness and Accelerating Research” video, which is available below: