$50,000 Donation to be used in the area of Relapsing Polychondritis patient-related travel to the National Institute of Health (NIH)

New York, NY August 3, 2018 – The Relapsing Polychondritis Awareness and Support Foundation Inc. (“RPASF” or the “Foundation”) is pleased to report that a $50,000 donation was made by current RPASF directors and officers to the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) to support intramural research in the area of relapsing polychondritis (“RP”), including patient-related travel to the National Institutes of Health (NIH).

Carol Giordano, founder and director said, “We are extremely pleased with the research being conducted at NIAMS and are grateful for their outstanding work.  Now, there is a much-needed patient travel program to the NIH, which is fantastic!

Susan “Dale” Ross, founder and director added, “The Foundation’s current leadership is highly collaborative and we have a keen sense of purpose.  We are determined to promote quality care for RP patients and facilitate research to advance a cure for RP — while we increase awareness about this disease and provide support for those who are suffering from it.”



About Relapsing Polychondritis
Relapsing polychondritis (“RP”) is a rare, debilitating, and in some cases fatal autoimmune disease.   It causes the patient’s own body to  attack the cartilage and proteoglycan-rich tissue.  This includes, but is not limited to, the ears, nose, joints, and upper and lower airways.



The Foundation’s purpose is to:

a. increase awareness about relapsing polychondritis,

b. provide support (primarily through the use of the internet, social media, and patient advocacy programs) for those who are affected by relapsing polychondritis,

c. support research to advance a cure for relapsing polychondritis,

d. promote quality care for relapsing polychondritis patients, and

e. engage in such other activities in connection therewith that the Board of Directors may authorize, in all cases subject to the provisions of Section 501(c)(3) of the Internal Revenue Code of 1986, as amended, or the corresponding provisions of any subsequent federal tax law (the “Code”).


Below is address, registered agent, and federal tax identification information regarding the Foundation:

Principal Office
1202 Lexington Avenue, Box 112
New York, NY 10028

Registered Office
5200 Willson Road #150
Edina, MN 55424

Registered Agent
Corporate Creations Network Inc.

Federal Tax Identification Number



Business record details are also publicly available on the Office of the Minnesota Secretary of State website:


Post a comment