Adult and pediatric patients are invited to come to the NIH in Bethesda, MD to participate in a research study. The purpose of the study is to observe how RP affects you and to collect blood samples for research. All patients will receive comprehensive clinical evaluation by physicians with experience caring for patients with RP. Specific treatments will not be offered as part of study participation, but recommendations will be provided to your regular doctors as appropriate.
RP patients who would like to have appointments at NIH and be considered for support from the Friends of Patients at the NIH should contact:
Wendy Goodspeed, RN
Research Nurse Specialist