Blog

National Institutes of Health (NIH) letter accepting RPASF’s gift of $20,000

The Relapsing Polychondritis Awareness and Support Foundation, Inc. (RPASF) is pleased that the NIH has accepted its gift of $20,000, which will be used to support research on relapsing polychondritis (RP). The gift was made possible by a partial research grant from the American Autoimmune Related Diseases Association, Inc. (AARDA),…...

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Aseptic Meningitis in Relapsing Polychondritis: A Case Report & Literature Review

Aseptic meningitis is an extremely rare neurologic complication of relapsing polychondritis (RP). We reported a case of a 58-year-old Chinese female with intractable headache, puffy ears, pleocytosis, and cranial magnetic resonance imaging (MRI) showing thickened and enhanced meninges. She was finally diagnosed of aseptic meningitis due to RP after full…...

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Relapsing Polychondritis: A Chameleon Among Orphan Diseases

Relapsing polychondritis (RPC) is a rare disease with recurrent episodes of inflammation of cartilage tissue leading to fibrosis and organ damage. Despite unknown etiology, there is some evidence of a genetic predisposition. The clinical presentation is heterogeneous and an association with other autoimmune disorders such as rheumatoid arthritis or different…...

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13 Doctors from 5 Countries Met in Washington, D.C. to Discuss Relapsing Polychondritis!

Washington, D.C. November 14, 2016 – The Relapsing Polychondritis Awareness and Support Foundation (“RPASF” or the “Foundation”) was thrilled to help host 13 Doctors from 5 Countries at the Henley Park Hotel in Washington, D.C. to discuss relapsing polychondritis (“RP”)! The Foundation is extremely grateful for this highly skilled group’s…...

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The National Institutes of Health (NIH) is interested in studying patients with Relapsing Polychondritis (RP)

Adult and pediatric patients are invited to come to the NIH in Bethesda, MD to participate in a research study.  The purpose of the study is to observe how RP affects you and to collect blood samples for research.  All patients will receive comprehensive clinical evaluation by physicians with experience…...

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Relapsing Polychondritis Awareness and Support Foundation Releases “RP The Ride of My Life”

The Relapsing Polychondritis Awareness and Support Foundation is proud to release its first documentary, “RP The Ride of My Life,” chronicling one woman’s journey to live life with purpose while suffering from Relapsing Polychondritis (RP), a rare autoimmune disease....

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$20,000.00 Matching Research Grant Awarded

The Relapsing Polychondritis Awareness and Support Foundation, Inc. (RPASF) is pleased to announce that we are the recipient of a partial research grant from the American Autoimmune Related Diseases Association, Inc. (AARDA), which will be matched by RPASF. As a result, RPASF and AARDA will be funding Dr. Marcella Ferrada’s…...

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Dr. Ferrada’s Abstract ‘Clinical Presentations of Relapsing Polychondritis: More Than a Swollen Ear’

Read Dr. Ferrada’s Abstract ‘Clinical Presentations of Relapsing Polychondritis: More Than a Swollen Ear’ which will be presented at the 2016 meeting of the ACR....

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Abstract Announcement

Friday, September 2, 2016, Washington, DC. RPASF, Inc. is proud to announce the following for each of the patients who helped and participated in our survey "Relapsing Polychondritis Epidemiology" : Dear Marcela Ferrada,...

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Case Report: A Case of Relapsing Polychondritis Initiating with Unexplained Fever, Hindawi Publishing Corporation Case Reports in Medicine Volume 2016

Relapsing polychondritis (RP) is a rare autoimmune disease affecting the multiple organ system. Here, we describe a case of RP initially presenting with high fever. The patient was referred to our hospital for further examination of fever of unknown origin (FUO). On admission, the patient reported dry cough in addition to…...

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