Blog

Relapsing Polychondritis Sufferers Get a Boost As Non-Profit Organization Continues Major Drive to Accelerate Research and Awareness

The Relapsing Polychondritis Awareness and Support Foundation Inc. (RPASF) mission is to support research to find a cure for a painful and chronic autoimmune disease that few physicians have heard of – and since July, with its newly elected members, the board of directors has gone all-out to give sufferers…...

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Dr. Jane H. Buckner, President of the World-Renowned Benaroya Research Institute at Virginia Mason (BRI), and Her Outstanding, Highly-Skilled Team Are Driving to Eliminate All Autoimmune and Immune System Disorders

On Friday August 24th, the Virginia Mason Foundation hosted “Grapes on the Green” at The Golf Club at Newcastle to benefit the Benaroya Research Institute.  The event was fantastic and successful – with nearly $500,000 raised to support medical research! It was inspiring to listen to Dr. Buckner (pictured here…...

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$50,000 Donation to be used in the area of Relapsing Polychondritis patient-related travel to the National Institute of Health (NIH)

New York, NY August 3, 2018 – The Relapsing Polychondritis Awareness and Support Foundation Inc. (“RPASF” or the “Foundation”) is pleased to report that a $50,000 donation was made by current RPASF directors and officers to the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) to support intramural…...

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Relapsing Polychondritis Awareness and Support Foundation (RPASF) Takes on new leadership to advance awareness and research

New York, NY July 23, 2018 – The Relapsing Polychondritis Awareness and Support Foundation Inc. (“RPASF” or the “Foundation”) is pleased to announce new leadership.  Earlier this month, RPASF appointed four additional members to its board of directors:  Nancy Linn, David Bammert, David DeRosa, and Michael Linn. Carol Giordano, founder…...

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NY Autoimmune Walk & Public Forum

NY Autoimmune Walk & Public Forum Sunday, September 16th  1-5pm Hudson River Park, Pier 45, Greenwich Village NY The New York Autoimmune Walk, hosted by AARDA, brings autoimmune patients, family members, and friends together for a walk around Hudson River Park.  There will be live music, a Nespresso station, an…...

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5th Year Anniversary T-Shirt Fundraiser – Has ended! Thank you!

The Relapsing Polychondritis Awareness and Support Foundation is celebrating its 5th year anniversary! It has been an honor to continue raising awareness and it is working! More people, including children, are getting diagnosed earlier than ever before! In celebration, we have come out with a 5th year anniversary, limited edition…...

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Welcome to your new Board of Directors for the Relapsing Polychondritis Awareness and Support Foundation!

Over the last few months, the Foundation has been busy evaluating the current Board for skills, abilities and tenure. Carol Giordano has been elected CEO. We wouldn’t be here without her! As you know, she has been battling RP for a very long time. She’s willing and able to battle…...

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The 3rd Annual Los Angeles Autoimmune Walk, Saturday, November 11th 1:00 – 5:00pm

That’s right, it’s that time of year again, only this year it’s bigger and better than ever before! There will be three bands, food provided by Chef Mike from last year, who will be treating everyone this with his amazing culinary delights. There will be raffles, giveaways, along with fun…...

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The Relapsing Polychondritis Awareness Support Foundation (RPASF) and the American Autoimmune Related Disease Association (AARDA) Walk & Fun Run

Ephram White Park Bowling Green, Kentucky Date: July 8, 2017 Time: 8:00 AM to 1:00 PM Hi Everyone, Do you know that when you sponsor a walker on our team, RPASF receives a share of that contribution? Also, when someone you know becomes a sponsor of the walk, our share…...

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National Institutes of Health (NIH) letter accepting RPASF’s gift of $20,000

The Relapsing Polychondritis Awareness and Support Foundation, Inc. (RPASF) is pleased that the NIH has accepted its gift of $20,000, which will be used to support research on relapsing polychondritis (RP). The gift was made possible by a partial research grant from the American Autoimmune Related Diseases Association, Inc. (AARDA),…...

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