The Relapsing Polychondritis Awareness and Support Foundation (RPASF Inc.) offers information about the disease, helpful contacts, links to our support groups, as well as information about upcoming autoimmune disease events and fundraisers.

Our Purpose

 

The Relapsing Polychondritis Awareness and Support Foundation’s purpose is to:

  • Increase awareness about relapsing polychondritis.
  • Provide support (primarily through the use of the internet, social media, and patient advocacy programs) for those who are affected by relapsing polychondritis.
  • Support research to advance a cure for relapsing polychondritis.
  • Promote quality care for relapsing polychondritis patients.
  • Engage in such other activities in connection therewith that the Board of Directors may authorize, in all cases subject to the provisions of Section 501(c)(3) of the Internal Revenue Code of 1986, as amended, or the corresponding provisions of any subsequent federal tax law.

Board of Directors

Our foundation’s Board of Directors includes members with a diverse set of experience including government, healthcare, non-profit development and fundraising as well private sector operational and corporate expertise across multiple disciplines. The team is strategic in our shared vision to advance awareness about relapsing polychondritis, promoting new research efforts, autoimmune diseases awareness, improving diagnosis and connecting patients with the resources and support they need.

Nancy Linn

Nancy Linn is a research advocate and philanthropist.  In 2011, she was diagnosed with relapsing polychondritis.  Nancy produced “RP The Ride of My Life,” documentary about her battle with relapsing polychondritis, to advance research about this and other autoimmune diseases in pursuit of treatments and cures.

Michael Linn

Michael Linn has over 25 years of operational, transaction and start-up experience in the investment management business.  Michael is a member of the board of directors of the American Autoimmune Related Diseases Association, Inc. (AARDA).

David Bammert

Dave has 30 years of experience in public and private sector development, including fund development, philanthropic donor research, marketing and recruitment, and grant writing.  He has a proven record of engaging donors to advance research and designing educational and advocacy experiences to connect researchers with various communities.

David DeRosa

Mr. DeRosa is a Mobility Lead at AECOM with over ten years of experience in both public and private sectors, as well as non-profit. He is based in Los Angeles and his recent experience has focused on delivery of transportation projects including Connected and Autonomous Vehicles, Hyperloop, High-Speed Rail, Light-Rail, and Streetcars.